PKD
Polycystic Kidney Disease affects kidney tissue by changing the basic structure filling our kidneys with multiples of cysts. Cystic cells replace normal functioning kidney tissue. The cystic kidney cells die and are not capable of regenerating. Eventually for some, polycystic kidneys can lead to decreased kidney functioning. This can lead to dialysis and/or organ transplant. Cystic cells sometimes replace our liver cells. Both conditions are passed within families through the genes; both conditions are inherited.
40% PKD'rs never require dialysis or transplant. Many of us are striving to be included with these healthy individuals. Among our personal choices, are which foods do we eat? Do we smoke? Do we exercise? Do we drink sufficient water?
We can modify our exposure to chemicals and kidney toxins. We can adjust how much exercise we do. We can self monitor and record blood pressure readings. We can maintain a running record of past blood pressure readings. We can decide how much water to drink. We can choose to eat foods low in salt. We can adjust our diet so we eat more alkaline plant based foods. We can find the means to lower our stress, enhance relaxation, and increase the blood flow to our kidneys.
With much guided attention from our personal physicians to these many details, we can exert some influence in maintaining health especially the health of polycystic kidneys. This can all begin to incline us toward the lucky 40% of PKD'rs who have healthy PKD polycystic kidneys throughout their lifetime.
We are unable to influence certain things in our lives. We cannot decide if we inherited PKD2, or the more common PKD1 gene, a more aggressive form with an earlier onset of symptoms.
We have no control if we are born male or female. Males with PKD have a higher incidence of cardiac problems and proceed earlier to left ventricular heart failure. If we are born female, and have liver cysts, there is a increased chance of developing severe PLD Polycystic Liver Disease. In both instances these symptoms are hormone related. We can continue to take special care with our overall health. For it is generally our hearts not our kidneys that leads to our eventual demise.
Maintain Cystic Kidney Health:- Maintaining alkalinity
- Correcting anemia
- Lowering blood pressure
- Diet
- Increasing kidney blood flow
- Decreasing proteinuria
- Eliminating kidney toxins
- Drinking more water
- Eliminate Animal Proteins
- Neutral daily protein 0.3 grams/kilogram Protein Chart
- Essential Amino Acids
- Use of essential amino acids from Calwood a formula designed for kidney patients. A newspaper article from Malaysian Times, Saving Failing Kidneys, explains how some countries are managing declining kidney functioning without the resources to pay for dialysis or organ transplants. A few PKD'rs have had limited success by working with their nephrologists and following the recommendations in the book Coping with Kidney Disease
- Albumin
- Phosphorus
- Potassium
When Kidney Functioning is Less than 20%:
Doctors begin dialysis preparations for patients when kidney functioning is less than
20%. They keep a careful watch with monthly blood work checks on functioning levels, on
albumin levels; on potassium levels; on phosphorus levels; and base excess or alkalinity.
- Organ Exchange Program - some have made use of the organ exchange program and plasmaphoresis.
- Dialysis - hemodialysis or peritoneal dialysis.