About 60% of PKD'rs experience pain.
By maintaining the integrity of ones own personal DNA, this can squelch the second hit mechanism that causes an increase in cyst numbers and symptoms. The size or number of cysts does not seem to influence the amount of pain we experience. Pain is seen with both small or large cysts; with great numbers of cysts or a small number of cysts. Through ultrasound imaging many have found that pain can stem from a particularly large superficial cyst, that expands and contracts and is seemingly closer to the skin's surface. Should you experience pain, seek out a knowledgeable physician to determine the correct medication and the origin or cause of your pain: back pain, chest pain, chronic pain, headache, joint pain, gout pain, arthritis pain, kidney pain, kidney stone, bleeding into a cyst, burst cyst, infected cyst, infected kidney, infected liver, infected bladder, heartburn, leg cramps, liver pain, surgery pain, tooth pain, or other pain. Do not allow anyone to tell you there is no reason for your pain.
Some have experienced success limiting pain through dietary changes.
It is important to get some relief from PKD PLD chronic pain. There is a clinical trial underway to study PKD Chronic pain at the Mayo Clinic in Rochester Minnesota, USA. This clinical trial uses splanchnic denervation to alleviate chronic PKD pain for which opiods have been tried. There are several available PKD Pain Centers in the USA. For inflammatory pains some have tried papain or papaya; others have tried pineapple or bromelain; and others have tried 10 cherries/ day when the pain is related to a high uric acid.
Women who take daily aspirin have fewer strokes. Men who take daily aspirin have fewer heart attacks. It is the cumulative effect, the life long additive effects from taking aspirin, tylenol, NSAIDs that are known to cause a decline in kidney functioning, especially with PKD, Polycystic Kidney Disease. Should you be asked to take daily aspirin, ask your doctor about taking either chamomile or chrysanthemum tea, both thin the blood and decrease inflammation around kidneys.