About 60% of PKD'rs experience pain.

By maintaining the integrity of ones own personal DNA, this can squelch the second hit mechanism that causes an increase in cyst numbers and symptoms. The size or number of cysts does not seem to influence the amount of pain we experience. Pain is seen with both small or large cysts; with great numbers of cysts or a small number of cysts. Through ultrasound imaging many have found that pain can stem from a particularly large superficial cyst, that expands and contracts and is seemingly closer to the skin's surface. Should you experience pain, seek out a knowledgeable physician to determine the correct medication and the origin or cause of your pain: back pain, chest pain, chronic pain, headache, joint pain, gout pain, arthritis pain, kidney pain, kidney stone, bleeding into a cyst, burst cyst, infected cyst, infected kidney, infected liver, infected bladder, heartburn, leg cramps, liver pain, surgery pain, tooth pain, or other pain. Do not allow anyone to tell you there is no reason for your pain.

Some have experienced success limiting pain through dietary changes.

It is important to get some relief from PKD PLD chronic pain. There is a clinical trial underway to study PKD Chronic pain at the Mayo Clinic in Rochester Minnesota, USA. This clinical trial uses splanchnic denervation to alleviate chronic PKD pain for which opiods have been tried. There are several available PKD Pain Centers in the USA. For inflammatory pains some have tried papain or papaya; others have tried pineapple or bromelain; and others have tried 10 cherries/ day when the pain is related to a high uric acid.

Women who take daily aspirin have fewer strokes. Men who take daily aspirin have fewer heart attacks. It is the cumulative effect, the life long additive effects from taking aspirin, Tylenol®, NSAIDs that are known to cause a decline in kidney functioning, especially with PKD, Polycystic Kidney Disease. Should you be asked to take daily aspirin, ask your doctor about taking either chamomile or chrysanthemum tea, both thin the blood and decrease inflammation around kidneys.

Devices to Decrease Pain

Skin cells and nerve cells have many similarities. Chief among these similarities are that they come from the same embryonic cell layer while in the womb and that they can communicate by using electricity. Amongst all the devices listed, the only one tried is the TENS unit. The others have not been tried.


Transcutaneous electrical nerve stimulation (TENS) is the use of electric current produced by a device to stimulate the nerves for therapeutic purposes. This stimulates the nerve, it tires the nerve so one does not experience pain. This device lasts about 30 minutes to 2 hours. The TENS unit uses electrodes attached to a specific part of the body. The body quickly adapts to the TENS signal, making it steadily less effective over time. TENS do nothing to affect the underlying reasons for the pain, which returns when the machine is not in use.


Self Controlled Energo-Neuro Adaptive Regulator (SCENAR) or (SKENAR) uses 'Reflex Biofeedback'. Noticeable responses include: 'reddening' of the skin (without any associated pain), slight temporary numbness, 'stickiness' (the device will have the feeling of being 'magnetically stuck or dragged' in that spot), a change in the numerical readout and an increase in the electronic 'sound' emitted from the device. SCENAR has biofeedback capabilities and ability to stimulate Neuropeptide generation, helping the body to achieve healing results. The device is moved over the skin in order to specifically find optimal treatment areas/points. Scenar's inventors, Prof. A. Revenko and Prof. A. Karasev quickly grew frustrated with the limitations of TENS, and wanted to go beyond just temporarily blocking pain. Scenar technology as of May, 2010, is an FDA approved device, for treatment of pain by a licensed health care provider.


Facilitates the ability of our body to restore itself at the cell level too, it can help the body to use the intrinsic abilities to heal itself. The frequencies regulate the shape of the signal using the impulse signal. This is used as a carrier only; there are other frequencies put on top. The feedback is still used, but it is different from the SCENAR feedback. There are now 46 feedback loops. The first energy-healing technology that is capable of helping you not just heal, but actually regenerate and often not only to the state your body had before the disease or injury, but to a healthy state.


With the active technology of treatment, the next impulse is formed on the basis of extrapolation of body reaction to the several previous impulses, creating a future impulse. This restores the body to the way it should be was substantially enhanced by the introduction of the active SCENAR and active COSMODIC.

We are  sharing our experiences with PKD/PLD Diet, an adjunct diet envisioning it complementing a physician's prescribed medical therapy. Consider testing this with your doctor's prior knowledge, who can  adjust it according to your own uniqueness by adding it to your current  treatment.

Medical Disclaimer