Chronic Pain PKD pain polycystic kidney disease

PAIN - Chronic Pain

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CHRONIC POLYCYSTIC KIDNEY DISEASE PAIN

ADPKD Autosomal Dominant Polycystic Kidney Disease Chronic Pain
Study Leader: Dr. Marie Hogan at the Mayo Clinic in Rochester Minnesota USA is conducting a clinical trial on chronic cystic kidney pain. This study utilizes an interventional procedure known as - Videothracoscopic Splanchnicectomy (VSPL) similar to Videothoracoscopic splanchnicectomy done for pancreatitis pain. If any have relentless PKD kidney pain or know of someone
that has PKD kidney pain the Mayo [with Dr. Hogan] is currently recruiting for a PKD kidney pain clinical trial.

Status: Currently Recruiting
Enrollment goal: 20

Description: To evaluate the effectiveness of VSLP procedure for pain management in patients with ADPKD. Contact: Marie C Hogan, MD, PhD 507-266-1963 hogan.marie@mayo.edu
Principal Investigator: Marie C. Hogan, M.D., Ph.D.

vspl, chronic pkd pain

KIDNEY CYST DEROOFING is another surgical procedure done for pain relief. There are a handful of surgeons throughout the USA who perform laparoscopic deroofing surgery of polycystic kidney cysts and polycystic liver cysts. There are dedicated operating suites for this. Deroofing is solely for pain relief. It does not make kidney functioning worse nor does it make it better. It does not affect liver functioning. Of those that are helped with their pain, almost all eventually have to repeat the procedure. One individual noted that her liver cysts came back with a vengeance. She experienced no pain relief. The amount of pain has nothing to do with cyst size or numbers of cysts. Decompressing the cyst and relieving the pressure on other organs does not always stop the pain. The response is very unique with each individual. Dr. J F Valente uses laparoscopic denervation of the kidney to relive chronic pain. He also has techniques to de-roof cysts for pain relief done laparoscopically. Dr Valente is at the Cleveland Clinic. Sometimes laparoscopic surgery is used to remove cystic kidneys provided their size is small enough to allow this. Another laparoscopic surgeon is Dr. Ralph Clayman at University of Irvine California. Commonly the native kidneys are left in place. Surgeons may wait 6 months before removing the native cystic kidneys. Natives are not always removed. They are removed for uncontrolled high blood pressure, chronic infections, and shear mass of the cystic organs

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