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PKD - Kidney Diet

PKD Health PKD Diet PKD Symptoms Anemia Blood Pressure Proteinuria Water PKD Trials PKD HALT Transplant PKD Articles PKD KIDNEY DIET In regards to lifestyle choices, we can liken ourselves to this ever changing flower, change is possible ALKALINE DIET LOW SALT 1200 mg sodium NEUTRAL PROTEIN WATER 3 Liters/ Day USEFUL FOODS AVOID FOODS ALKALINE DIET A plant based diet that is alkaline and geared toward kidney and liver health seems to work best for most of us. Some have reported an alkaline diet diminishes protein spillage in the urine; lowers blood pressure; corrects anemia, diminishes kidney cyst growth, and for some has resulted in improved kidney functioning. For more on alkaline foods click here. LOW SALT 1200 mg of sodium - eliminate all canned goods, prepared foods, frozen dinners, fast food, salty snacks and take time to read sodium levels of purchased foods. To assure that you are eating low salt cooked foods, try sampling your own cooking. A low salt suggestion - Daily place 1/8 tsp Himalayan salt in a shaker. This small amount of salt can be consumed daily. It can be used for seasoning, for baking, for any purpose. At the end of the day, the 1/8 teaspoon needs to be tossed and replenished with a new 1/8 tsp Himalayan salt placed again into the salt shaker. Some have experienced by using Himalayan salt there is no change in blood pressure. A few adventurous have tried one drop of solé each morning in a glass of mineral water. To read about solé, click here. In a clinical trial patients were given either salt restriction or medication to control blood pressure. Individuals who restricted salt fared better. For more information on blood pressure click here. NEUTRAL PROTEIN Researchers calculated the amount of protein intake needed daily to keep the body in a neutral protein balance. That amount is 0.6 grams/kilogram. The formula is body weight divided by 2.2 then multiplied by 0.6. For instance if one weighs 110 pounds divided by 2.2 = 50 kilograms multiplied by 0.6 = 30 grams of protein is the protein intake needed to keep this body in a neutral protein balance. If one is eating an alkaline diet that keeps the urinary pH at or near 7.0, it is likely this individual is also in a neutral protein balance. For more information on protein click here.  Avoid gorging on protein like a lion. WATER Drinking ample of water shuts down vasopressin, a trigger for cyst growth. The amount of water to raise urine osmolality equal to that of serum might be twice the urine output or 3 quarts or 3 Liters. We will have to await clinical trials to prove or disprove if in humans cyst growth will be diminished. A page with information about bottled water is here. To read more about Water, click here CAFFEINE Avoid caffeine in all its forms. This triggers cyst growth. Maintain a consistently low blood pressure. For more on caffeine click here kidney toxins Eliminate kidney toxins. More on avoiding kidney toxins. INCREASE KIDNEY BLOOD FLOW Exercise and rest increases kidney blood flow - lay supine raises kidney blood flow as well as certain blood pressure lowering medications. Information on kidney blood flow click here. USEFUL Acorn squash Almonds Almond Milk Apple Apple Juice Apricot Arrowroot Artichokes globe Artichoke Jerusalem Artichokes sunchokes Asparagus Avocado Bamboo shoots Banana Barley * BarleyGrassjuice * Beans green wax Beef tea -distilled Beet tops Beet roots Bok choy Boysenberry Broccoli sprouts * Broccoli * Burdock root Cabbage Cabbage juice Carrots Cauliflower Chamomile Chard Cheese Cherries Chestnut Chia seeds Chia oil Chicory Chinese peas Cream Coconut Coconut water * Collard greens Corn meal Corn on the cob Cruciform vegetables * USEFUL Daikon radish Dairy Dates Delicata squash DIMs broccoli * Drumstick plant * Edible flowers Endive Escarole Garlic Golden Delicious apple Grape juice Grapes Grapefruit Gravenstein apples Greens leafy * Guava Hemp Seed oil Hemp Seed butter Himalayan salt Honeydew melon* Ice Cream Jerusalem artichokes Kale Kiwi Kohlrabi Kumquats Lettuce exclude iceberg Lemons Lemon juice * Lemon thyme Limes Linden flower Loquat PKD POSSIBLY USEFUL MEDICINES Lei Gong Teng Triptolide Octreotide Sirolimus Tolvaptan Water USEFUL Mandarins Mango Melon Melon juice * Millet Mother's milk Mulungai * Mushrooms Mustard greens Myer lemon * Nasturtiums Nectarines Nettle Extract * Nettle leaf Okra Onions Olive oil Orange Parsley Parsnip Passion fruit Paw paw Peach Pear Peas Persimmons Pineapple Pomelo Pumpkin PKD USEFUL HERBS Artichoke DIMs broccoli sprouts* Hibiscus Linden Flower Tea or Honey Nettle Extract* Oregano Parsley Rooibos * Rose hips Saffron Thyme more on herbs USEFUL Quince Quinoa Radish * Radish sprout * Raspberry Rhizomes Rice syrup Rice Milk Romaine lettuce Rutabagas Salsify Sesame Soba Noodles Sorrel Spelt Squash Summer Squash Sunchokes* Swedes Sweet Potato Swiss Chard Tahini Tangerine Tupelo Honey Turnips Turnip Greens Ube Water Waterchestnut Watercress Watermelon * Watermelon seed tea * Wheat Grass Juice Wild rice Winter Squash Yams Yellow Squash Zucchini *especially useful for PKD AVOID HARMFUL Alfalfa Sprouts Animal Proteins Aluminum Ammonia Anabolic Steroids Artificial Sweetener Aspirin BBQ Meats Beef Bacon Black tea Blood dishes Bluefish Bologna BPA Bratwurst Butter Caffeine AVOID ALL FORMS Candy Celery Chaparral tea Charred meats Cheerios Cheese Chocolate Cod Liver oil Coffee AVOID ALL FORMS Cola AVOID ALL FORMS Comet Corn Syrup Cream Creatine Crisco Croissant Crustaceans AVOID HARMFUL Dairy DDT De-caf Chocolate De-caf Coffee De-caf Cola De-caf Tea Donuts Dry Cleaning Duck Eel Eggplant Forskolin French Fries Fructose GM Foods Green Tea Ground meats Hamburger Hard cheese Hot dogs Iceberg lettuce Lard Licorice Liver Liverwurst Lobster Margarine Microwaved food Miso Multiple vitamins Nightshade Nato Noni Juice AVOID HARMFUL Paté foie gras Peanuts Pepperoni Peppers Pink meats Plums Potato Potato chips Powder soaps Quail Rice wine Rindswurst Salami Salmon Salt pork Sausage Scallops Scrambled eggs Shell fish Shrimp Soy Soy milk Squab Starfruit Stevia Strawberry Sugar Tamari Tea AVOID caffeinated Tomato Tuna Turkey Tylenol AVOID HARMFUL Vegemite Vinegar Wheat Wheat Germ White Rice Windex White Tea Wine Yeasted Bread Yeast AVOID KIDNEY TOXINS Aspirin Aleve Creatine Caffeine Chaparral Chondroitin Ephedra Gentamycin Glucosamine Ibuprofen Lithium Motrin NSAIDs Naproxen Paracetamol Phenacetin Starfruit Tylenol PKD AVOID HARMFUL HERBS Chaparral Forskolin Ginkgo Biloba Certain Chinese Herbs AVOID HARMFUL Aluminum Candy French Fries Lard Margarine Peanuts Potato Chips White Flour White Sugar BETTER  CHOICES TO REPLACE Lamb Beef Bean burger Hamburger Haddock Salmon OrangeRoughy Tuna Perch Sardines Cottage Cheese Parmesan Goat Cheese Cheddar Buttermilk Whole milk Plugra cultured Butter Yogurt Sour Cream Wild Game Poultry Wild Turkey Turkey Pheasant Poultry AVOID ANIMAL PROTEINS - some bETTER CHOICES when choosing to eat animal protein If it is not possible for you to eliminate all animal foods there are some better choices than others. Limit the quantity of animal proteins to 3 ounces of meat (the size of a deck of cards) or 1 ounce of cheese (the size of one dice), once or twice per week. Should you find this difficult, try eating less than three ounces of animal protein per day. Do not abstain from animal products for several days, then one day, splurge on a large quantity of meat. This is known as eating like a lion and this will reduce kidney functioning in healthy individuals. It decreases the GFR, Glomerular Filtration Rate through the kidneys. Diet Sleuth is a computer program for those wishing to calculate more accurately the amount of proteins, potassium, phosphorus taken daily. For a list of protein in some common foods, click here. BETTER CHOICES ANIMAL FOODS LAMB  3 ounces  [one lamb chop] FISH  Flat white fish non oily with eyes on the same side of the head CHEESE  soft white cheeses (goat) cottage cheese or quark EGG Poached egg yolk once a month DAIRY cultured Dairy delicious low phosphorus dairy products •buttermilk •plugra butter. Keep butter to less than a tablespoon per day • cottage cheese (2 ounces) • plain yogurt with added acidophilus - half a cup. For an extra boost, open an acidophilus capsule and add the powder to this half a cup. • buttermilk cultured • skim milk 2 ounces why lAMB is a BETTER CHOICE Lamb has different molecular protein structure than beef. Beef or cows eat grasses that have the residual pesticides still present, long after these chemicals have been banned from farming. Beef cuts that are marbled are said to be the choicest. This marbling that makes the meat so tender is fat. Hormones are stored in the fat tissue and it is these hormones plus the chemicals from the grasses eaten from contaminated soil that is harmful. DAIRY BETTER CHOICES cheese, cream, ice cream, milk. All dairy puts an extra workload on the kidneys and dehydrates the body. The solutes are too large for cystic kidneys to effectively filter. Dairy tends to dehydrate the body. Salt that is added to cheese and ice creams plus the extra large molecular solutes, plus the dehydration all can raise blood pressure and decrease kidney functioning. Some of us have experienced by taking a bite of ice cream or a sip of milk, this is followed by an episode of awakening in the middle of the night with a cotton mouth, an intense thirst that one feels as if their tongue is totally parched and their mouth is filled with many bits of cotton puffs. We have experienced this from all forms of dairy. Fatty portions from animal proteins are much more harmful than the leaner sections, i.e. skim milk is preferable to cream. Limit fats to a maximum of one ounce per day. If one continues to eat meats and animal foods than any type of cheese needs to replace the meat for that day. The amount of cheese allowed is one ounce whereas the amount of lean meat is approximately three ounces once or twice a week. Goat cheese is healthier than cow cheese, especially the type made by local farms, especially if one can find a salt free variety is sold. Cultured dairy is preferable i.e. buttermilk, yogurt, plugra butter. Limit butter fat and oils to less than a tablespoon per day. WHICH ARE BETTER CHEESE CHOICES? - TO REPLACE CHEESES ON THE RIGHT Blue Cheese Parmigiano Reggiano Blue Veined Cheese Dry Cheeses Cottage Cheese Cheddar Cheeses Enmenthaler or Swiss Cheese Hard Cheeses Feta Salt Free Cheese  Mimolette Cheese  Goat Cheese Mizithra Cheese  Paneer Cheese Orange Cheeses  Quark Cheese Kefalotyri   Roquefort Cheese Parmesan   Swiss Cheese Romano Cheese   Sheep Cheese Reggiano   Soft White Cheese  Yellow Cheeses what fISH are BETTER CHOICEs? Enjoy flat white fish that is non oily and low in fat. such as haddock, cod, orange roughy, perch, For more examples of flat white fish click here. Avoid fish oil supplements. These are high in mercury. Eliminate cod liver oil products by checking the ingredients lists in cosmetics, vitamins, and supplements. AVOID fatty fish greater than 1% fat content Pollock 1.0 Grouper 1.0 Yellowfin Tuna 1.0 Snapper 1.3 Monkfish 1.5 Ocean Perch 1.6 Mackerel (King) 2.0 Halibut 2.3 Striped Bass 2.3 Smelt 2.4 Rainbow Trout 3.4 Swordfish 4.0 Bluefish 4.2 Catfish 4.3 Bluefin Tuna 4.9 Salmon 6.3 Albacore Tuna 7.2 Lake Trout 9.4 Chinook Salmon 10.4 Mackerel (Atlantic) 13.9 Chinook Salmon 18.0 PKD DIET These are suggestions to try. They are gathered from among our collective experiences - anecdotal knowledge. We are each unique with our own set of symptoms from various foods. Before trying something new, check all changes with your doctor. Eliminate toxins, especially kidney toxins, Exercise and rest sufficiently to keep kidney blood flow abundant With normal kidney functioning, one possibility to try, is a diet that is alkaline, plant based, geared toward kidney health, with an abundance of starchy vegetables: rutabagas, turnips, sweet potatoes, beans, brown rice, sweet corn, spelt, rye, all whole grains and a sprinkling of a few alkaline nuts such as almonds, chestnuts and coconut. A low sodium, 1200 mg sodium diet helps to keep blood pressure low which in turn can help keep cystic organs smaller. A low sodium diet is more easily achieved by cooking all your own foods, eliminating prepared, canned, and take out food. If salt is necessary, one can try measuring out an 1/8 teaspoon of Himalayan salt daily, then tossing it at the day's end. The following day start fresh with only 1/8 teaspoon. A neutral protein plant based diet that is individually calculated to 0.6 grams of protein per kilogram of body weigh is another thing to try for maintaining healthy cystic kidneys. Most recently it was discovered that by drinking 3 liters of water per day, this too might help to assure the health of polycystic kidneys. Assure that the body takes in EAA essential amino acids and EFA essential fatty acids daily. Talk with your doctor about any of these possible changes that you may wish to try. Avoid all caffeine. (coffee, chocolate, black tea, green tea, white tea cola, and de-caffeinated beverages as well). If your doctor permits, try chamomile, rooibos, hibiscus, thyme, saffron, rose hips, linden flower, or veronica tea. For a little bubbly, try cranberry, apple or grape juice mixed with Perrier mineral water. Remain alkaline. • Eat foods in season and close to a home grown state with little processing. • Locally grown is best. • Organic is second best. • Fresh produce is third. • Frozen is fourth. • Try to avoid canned, prepared, fried, and microwaved food. Ask to see the renal dietitian for an alkaline diet calibrated specifically for you. An alkaline vegan diet that avoids all animal proteins (ground meats, dairy, egg whites, milk, cheese, beef, pork, chicken), soy proteins, yeast, alcohol, concentrated sugars seems to make us feel better. Fruits and Vegetables to avoid: salted foods, tomato, potato, eggplant, peppers, celery, star fruit, strawberries, plums, prunes, soy, margarine, crisco, potato chips and peanuts. While kidney functioning is still excellent, dietary things that help PKD are high potassium foods; plant based diets with an emphasis on raw fruits and vegetables; whole food starches such as corn on the cob, sweet potatoes, rutabagas, turnips, winter squash. Include a few selected pre-soaked grains (spelt, quinoa, rye, oats, kasha, brown rice) and pre-soaked nuts (almond, coconut, chestnut). Enjoy plenty of leafy greens, broccoli, radish, and below ground root crops. Soak all beans, legumes, grains, seeds and nuts before eating. This lowers their phytic acid content, making these foods more digestible and alkaline. Why are aspirin, NSAIDs, phenacetin, tylenol, ibuprofen, aleve, to be AVOIDED ? These medications have a lifetime cumulative detrimental effect on kidney functioning. If there is the occasional need for aspirin, this is different than taking aspirin everyday for a lifetime. Sometimes the detrimental effects need to be weighed against the positive effects of a medication. For this take your doctor's advice and question him to explain how this can negatively affect your kidney functioning. Why is star fruit (Averrhoa carambola) to be AVOIDED ? I have enjoyed the gorgeous array of produce from Hilo's Big Island Farmer's Market. I had previously eaten star fruit and mango, a traditional local combination. I discovered that starfruit is a known kidney toxin. Star fruit originated in Southeast Asia and is readily available worldwide.. It causes an array of symptoms in patients with chronic renal failure or end-stage renal disease. The symptoms vary and include insomnia, intractable hiccups, agitation, muscle weakness, confusion, consciousness disturbances of various degrees, seizures, and cardiorespiratory arrest. The various star fruit subspecies contain different toxins, including a powerful neurotoxin that is suspected to accumulate in blood, cross the blood-brain barrier in chronic renal failure patients, and eventually leading to irreversible damage. Star fruit intoxication is a serious fruit intoxication frequently observed in patients with chronic renal failure.To date 2 PKD'rs have written about relatives succumbing to star fruit toxins. Because no effective treatment is currently available, patients— especially those who are newly diagnosed with chronic renal failure or end-stage renal disease—must be warned not to ingest star fruit, even in small amounts. Here is a study on a guinea pig heart, recommending that (star fruit) carambola extracts are to be avoided in individuals with normal or diseased hearts. Why is Glucosamine and Chondroitin to be AVOIDED ? It is made from shellfish and shark cartilage, these are high in copper and high in oxalates, which are detrimental to individuals with PKD. If one has an iodine allergy to imaging dyes, this may have a cross over allergy. A low - oxalate diet may be necessary to prevent future kidney stone formation. Completed GAIT clinical trials, a multi-center trial of 1500 individuals Glucosamine/chondroitin Arthritis Intervention Trial (GAIT), run for 24-weeks, concluded that Glucosamine and chondroitin sulfate alone or in combination did not reduce pain effectively in the overall group of patients with osteoarthritis of the knee. Analyses suggest that the combination of glucosamine and chondroitin sulfate may be effective in the subgroup of patients with moderate-to-severe knee pain must be confirmed by another trial. Another clinical trial of Glucosamine supplementation showed that it does not affect blood sugar in individuals with type 2 diabetes mellitus. The American College of Radiologists concluded that there was a possible benefit in severe cases of knee osteoarthritis. Another comment from the NIH. Here are two sources vegetarian glucosamine Freeda vegetarian glucosamine Swanson vegetarian glucosamine. Why is Noni juice (Morinda citrifolia) to be AVOIDED ?  Hawaii is home to the growers of noni juice. Noni has had some cases of harm to kidneys according to the growers of noni juice. They suggested with my history of both kidney and liver  disease, I avoid noni. Noni is very high in potassium and has been a cause of very high potassium levels. Lemon juice is a great flush, low in potassium, cheaper to obtain, and makes one alkaline .There are several cases in the literature that  link noni to inflamed livers (hepatitis). Hepatitis induced by Noni juice from Morinda citrifolia Hepatotoxicity of Noni juice: report of two cases. Acute hepatitis caused by Noni Why are multivitamins to be AVOIDED ?   Unless prescribed for you by your physician, avoid multivitamins, instead try individual vitamins as needed. Multivitamins contain high amounts of copper. Researchers have noted that individuals who develop cancers have higher amounts of copper in their bodies. Additionally multiple vitamins contain many of the fat soluble vitamins that can lead to an vitamin excess. Choose an all natural vitamin made from a food source so the micronutrients will be present. Juicing with nutrient dense calorie poor fruits and vegetables are especially good for the body. When some take supplements or vitamins, they take the vitamins specifically needed than re-check vitamin levels. This allows the body to continue to manufacture its own vitamins such as B12 from the food. Certain vitamins if taken after 2pm, interrupt a restful night's sleep i.e. B vitamins. Some alternate ways to take a month's vitamins is one month on, and one month off. A report has been released about caution with megavitamins: Unsafe Levels of Selenium Found in Dietary Supplements ROCKVILLE, Md., April 9 -- The FDA has identified hazardous levels of selenium as the cause of 43 adverse events stemming from use of certain flavors of the dietary supplements Total Body Formula and Total Body Mega Formula. The distributor of the products, Total Body Essential Nutrition, of Atlanta, has recalled the Tropical Orange and Peach Nectar flavors of Total Body Formula in eight- and 32-ounce bottles and the Orange/Tangerine flavor of Total Body Mega Formula in 32-ounce containers. How do you easily swallow large tablets? If  bananas are allowed in the diet, try chewing a bite of banana but do not swallow it. Then place the tablet in amongst the chewed banana and swallow both together without chewing the pill.