PKDiet web site listing a program to try with dietary changes, lifestyle changes for individuals with cystic organs —kidney, liver, Caroli's, medullary sponge kidney, PKD, PLD, and more.

RESOURCES helpful links

SUPPLIES Links
Creatinine Converter
Creatinine Calculator another

Creatinine Calculator one more
Diet Sleuth dietary software with a free trial for 30 days. Useful for both windows and mac computers. It will calculate your daily potassium, protein, fats, carbs, phosphorus, calcium, magnesium, calories and more. It will give a weekly or monthly graph chart and you can add recipes to it of your favorite food.
Laboratory tests and understanding them.

PH PAPER
For testing the pH of urine in the evenings, pH Stix Alkalive is the easiest to use. The cost for the dipstix is a bit more than pH paper on a roll. The color chart is a double range of colors from yellow when acid, green neutral and blue when alkaline. 80 strips are about 2 for $12.72.

pH testing strip

The pHydrion Vivid strips, one tears off a piece from a paper roll. These are easy and less expensive than the Alkalive pH dipstix. Order No. 067 with a pH 5.5-8.0 Vivid for $6.50.
protein testing strips
Email Micro Essential Lab for pH papers on a roll. Ask for the refills for #067 with a range of 5.5 to 8.0. It measures in increments of 0.2 pH. The price is 3 rolls for $20 or $50 for 10 rolls. This is a very long roll that will last about 3 months or more.
PROTEIN TESTING PAPER - ALBUSTIX Protein dipstixFor checking for urinary protein albustix are available 100 for $27.99 through Canada. There are also some available in the UK 50 stix for about $13 or £ 6.50 from Westons.
Creatinine Clearance Calculators
Creatinine Clearance
another
Creatinine Clearance
one more
Protein Calculator for daily intake.
Phosphorus foods a listing of 999.
The ancient art of bentonite clay baths helps remove toxins.
Vitamin D or how to get this vitamin from walks in the sunshine.



SUPPLEMENTS
IRON LIQUID HERBAL - IRON Floradix or liquid iron with herbs by Salus-Haus. A few are taking this form of iron and have discovered it does not cause any constipation. For about iron Floradix written in German (the manufacturer) click here. For more on why a liquid is more readily absorbable, click here. Check with your doc about prescribing iron. It needs to be taken with vitamin C to activate (rose hips all natural) and milk and calcium will de-activate. If one is taking cream of wheat cereal with iron, the iron absorption will be lost if milk is added to the cereal

ESSENTIAL AMINO ACIDS - EAA
EAA Calwood This is their homepage. Calwood makes a mixable powder containing 8 essential amino acids.Type in the word Nutrasentials. This will take you to the order page. The powder mixes up with water cherry, grape, or orange. It does contain artificial sweetener to make it more palatable.The candy tastes a bit like play dough with artificial flavors.

Calwood Nutritional's, Inc.
5331 Landing Road
Elkridge, MD 21075
(800)479-9942
(410)796-5560
(410)796-7559 fax

EAA
Gambro makes tablets of amino acids. It says on the package to take ten daily with meals, but Dr. Walser recommends 15. Made for kidney patients, these pills are easy to swallow with a small amount of water. Download Gambro amines specification sheet and published article on their use. Aminess N, is the essential amino acid supplement product that GAMBRO offers. To place an order, please call GAMBRO toll free at 1-800-651-2623. The price is $65.00 for a bottle of 300 tablets.

Both Calwood and Gambro have the same nitrogen poor amino acid supplements used by Dr. Mackenzie Walser in his clinical trials. Several individuals willing to stick with his diet were successful in stopping malnutrition, raising serum albumin, lowering creatinine, eliminating anemia, and improving kidney functioning. This 22 gram protein diet is supplemented with amino acids, zinc and iron (if you take iron, take vitamin C with rose hips so 50% of the iron is not eliminated in the gut). Low serum albumin, usually an indicator of malnutrition, came back to normal limits by decreasing protein intake to 0.3 grams per kilogram of body weight. COPING WITH KIDNEY DISEASE, eliminates all animal proteins as well as some high protein, high phosphorus, high nitrogen and high potassium vegetables. These are a few articles.
22 Gram Protein Diet for delaying dialysis M Walser MD
Chronic Renal Failure low protein diet outcomes
Saving Failing Kidneys.


ESSENTIAL FATTY ACIDS - EFA
EFA - Hemp seed meal, butter, and oil for omega 3's.Hemp oil contains more EFA Essential Fatty Acids than flax. It is free of potential toxic contaminants commonly found in fish oil supplements. It also provides the perfect 3:1 EFA balance. There are organic hemp seed oil caps from Canada. I have found hemp seed to be the essential fatty acids that does not cause pains or increase in abdominal girth. Both fish oil and flax seed oil cause pain and cyst expansion and are to be avoided. Omega 3's hemp seed oil caps is useful for the daily intake of essential fatty acids.

 

 

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FOODS
List of Low Protein Foods provided by Gayle
Blueberry and cranberry are especially useful for kidney health. Northland brand is delicious. Dilute 2 ounces in 1 ounce of mineral water. Even better is to freshly juice in season cranberries.
Bread
non yeasted breads like Spelt bread can be purchased online from Pacific Bakery. They have a variety of non-yeasted breads such as Spelt, Rice, Rye, or Kamut; Rebates and deals; nutritional info; recipes spelt and spreads and purchase an informative Video on How to bake Non Yeasted Breads.
Parsley is useful to lower blood pressure. Chew a few freshly grown sprigs. It will need to be planted each year.
Garlic is another food that helps lower blood pressure, maintain alkalinity, and limit an increase in disease forming bacteria.
Cheese low Phosphorus developed by Nephrologists called Dairy Delicious link is from JC
Soups
frozen vegan by Tabatchnick. Some Organic Soups; some low sodium soups.
Vegetarian Entrees
special diets like all veggie frozen-Taste- like-Chicken-Nuggets from Gardenburgers Soy Free foods are here.
Amy's organic frozen entrees, low sodium
Celiac Disease, Vegetarian soups. Carefully check all ingredients. Avoid soy and dairy with liver cysts.
Mulungai
or drumstick plant is said to be very useful as a solution to world hunger. This vegetable is said to give protein to the body in a very digestible plant form. It is also called Moringa.
Saffron
organic is available for about $35 for a huge tin which lasts about two months. This is a useful herb for liver cysts, lowering blood pressure, and encouraging clotted constricted vessels to lay down new pathways.
Salt Himalayan Pink crystal salt Halite also known as Himalayan crystal salt is a wonderful salt for those times when you need to use a touch. When combined with a natural artesian water filtered through layers of volcanic rock, one drop provides bodies with 84 essential minerals in the exact proportions that are needed by the body. It is said to have stored sunlight within its crystals. Here is a recipe for solé. To buy different forms of halite. Halite is useful for energy work. Most of this information is from the German book:
Water and Salt the essence of Life.
Spelt flour is available from purity foods. Purity Foods is located in Okemos, Michigan USA. Spelt can be found at local health food stores.
Tupelo honey has a different molecular structure, higher in the ratio of levulose than any sweetener; thus it will never granulize. Its sugar structure is so different it bypasses the liver and is easily absorbed. It is one honey I consistently test alkaline and I experience no mood swings, headaches, or liver pains. It does not elevate my cholesterol. This was first harvested by Creek Indian tribes near what is now the southeastern states of Georgia, South Carolina, Mississippi, and Florida. The bee honey utilizes the nectar from the high black gum tree flowers that grows along river banks. Here is a map of where tupelo
honey tupelo honey usa map might be harvested based on the location of gum trees within the United States. Lanier is one company selling tupelo honey. I have heard it can be found at health food stores, Safeway, and bee apiary farms. Another delightful honey I have found in Europe is Linden flower honey, also a tree flower honey.
Thyme flowers make a delightful tea, a pleasant aromatic honey. Thyme can provide some antiseptic properties as well. Thymol is made from thyme.

last updated: Wednesday, April 16, 2008 3:44 PM

 

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