Treatment PLD
Surgical Treatment de-bulks a massively large polycystic liver.
Liver Resection
Liver Transplant
Liver TAE
Liver Cyst Deroofing
Medical Treatment attempts to slow down growth of a large polycystic liver.
Proton pump inhibitors
Eliminating dairy
Eliminating caffeine
Eliminating hormones
Eliminating estrogen disruptors
Diet has brought some success
Octreotide lanreotide, sandostatin LAR not yet released for the treatment of PLD
Liver dialysis offers temporary relief should a PLD liver fail; this is rare.
Through a gathering of our collective information, several helpful Polycystic Liver Disease specialists have emerged. Dr. Vicente Torres at the Mayo Clinic in Rochester, Minnesota USA, is one such person; he is a beacon of light amidst a fog of uncertainty surrounding PLD. Listen to a PLD lecture by him. Dr. Torres is a knowledgeable physician, a great human being and a very caring person. His office generates most of the Polycystic Liver Disease research. An excellent polycystic liver resection surgeon is Dr. D. M. Nagorney also from the Mayo Clinic. It is through these two medical pioneers that the possibility exists for us to have liver resection surgery for PLD. Dr. Ubara in Japan achieves about a 40% reduction in overall polycystic liver size with hepatic artery ablation a procedure he has performed for PLD. If liver pain becomes severe requiring opiods for relief, there is a procedure called splanchnic denervation useful for relieving chronic pain that opiods fail to touch. A few well chosen unique individuals have undergone extensive laparoscopic liver cyst deroofing for pain. This procedure provides temporary pain relief and oftentimes needs repeating.
We are hopeful that Octreotide clinical trials to shrink liver cysts will open the door to other non-surgical treatments for PLD. Octreotide clinical trials are currently taking place in Italy, Belgium, the Netherlands, Italy, and at the Mayo Clinic in Rochester, Minnesota USA. Dr. Drenth in the Netherlands is another PLD researcher currently conducting PLD clinical trials with lanreotide in Holland and Belgium. Negri Mario Institute in Italy has an ongoing three year follow up octreotide clinical trial.