PKD DIET

Pasireotide

Pasireotide

A 2014 study in the PKD animal model shows Tolvaptan + octreotide to have a synergistic effect on cyst formation, better than either one alone.

Some symptoms can include:
  • diabetes
  • increasing tiredness
  • no appetite
  • nausea
  • vomiting
  • low blood pressure
  • high serum potassium
  • low serum sodium
  • low blood sugar

    ↑ Side Effects

    Octreotide Estrogen Polycystic Liver

    In the 2013 article Somatostatin Estrogen and Polycystic Liver Disease, the authors note from reviewing current medical literature, that further liver cyst reduction does not occur after stopping octreotide for 6 months and may even result in re-growth.

    My own experience is very different. For a year following stoppage of octreotide, I did not experience a regrowth of my liver size. My liver size did not regrow. Once restarted on octreotide I have experienced shrinkage of my liver size and for each subsequent year while taking octreotide. (though not as much as the first year) I think our unique responses to octreotide LAR, pasireotide, lanreotide can be very individually and vary greatly as do the side effects that we can come to experience.

    • We are  sharing our experiences with PKD/PLD Diet, an adjunct diet envisioning it complementing a physician's prescribed medical therapy. Consider testing this with your doctor's prior knowledge, who can  adjust it according to your own uniqueness by adding it to your current  treatment.

    Medical Disclaimer