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PLD   Polycystic Liver Disease - our experiences

Massive PLD Polycystic Liver Disease Forms multiple cysts throughout the liver. Normal liver tissue re-grows attempting to displace areas of cystic liver. The liver is the only human organ capable of regeneration. This can result in a huge growing cystic liver like the one pictured above. polycystic liver disease    normal liver Polycystic liver disease PLD is inherited. Multiple cysts displace normally smooth liver tissue. With ADPKD both kidney and liver cysts are present. ADPLD has only liver cysts. News received from time to time, is it is a rare event for a cystic liver to fail. Yet as a cystic liver enlarges it will gradually slow down in performing some of its processes. Hormones, particularly estrogen, rapidly spurs the growth of liver cysts. As the liver becomes filled with cysts, the metabolism of estrogen diminishes. A saliva hormonal profile test can document these changes, but many are reluctant to have this costly lab test performed when it does not alter the treatment of PLD. Only 8% of us go on to develop severe PLD. The other 92% are unaffected by PLD causing a minimal, if any symptoms. Sometimes we experience a prolonged bleeding time or sometimes a rise in billirubin, but these are rare events. Through a gathering of our collective information, several helpful specialists with a great understanding for Polycystic Liver Disease have emerged: Dr. Torres at the Mayo Clinic in Rochester, Minnesota USA. He is a beacon of light amidst a fog of knowledge about PLD. Dr. Torres is a helpful and caring physician and a contributor to most of the current research with Polycystic Liver Disease. An excellent liver resection surgeon is Dr. D. M. Nagorney also from the Mayo Clinic. Should you need a transplant, Florida does more transplants than any other state. In the UK there are several hospitals performing liver transplants for cystic livers. Dr. Ubara in Japan achieves about a 40% reduction in overall cystic liver size with hepatic artery ablation. If liver pain becomes chronic requiring opiods for relief, there is a procedure called splanchnic denervation useful for relieving pain that opiods fail to touch. A few well chosen unique individuals have undergone extensive laparoscopic liver cyst deroofing for pain. We are hopeful that Octreotide clinical trials to shrink liver cysts will prove useful. Clinical trials are currently taking place in Italy, in the Netherlands and at the Mayo Clinic in Rochester Minnesota USA. choose POLYCYSTIC LIVER DISEASE article liver involvement in ADPKD multiple liver cysts in ADPLD polycystic liver disease Netherlands pld gene Dr. Perrone on PLD part 2 Dr. Perrone on PLD part 1 Dr. Torres speaks on PLD - listen Dr. Somlo PLD researcher ADPLD the clinical profile cardiac compression caused by liver cysts pericardial effusion common finding PKD? hepatic venous outlet obstruction in PLD Choose a LIVER RESECTION article treating highly symptomatic polycystic liver disease Liver resection cyst fenestration 1995 by Dr. Nagorney Combined hepatic resection with fenestration 7 patients ADPLD clinical profile page 166 talks about liver resection PLD treatment of choice liver resection Polycystic liver disease: experience at a teaching hospital biliary cystadenoma biliary cystadenocarcinoma autosomal dominant polycystic liver disease ADPLD in a family without PKD A liver resection surgeon - Dr. Nagorney A PLD physician - Dr. Torres choose LIVER TRANSPLANT article bloodless liver transplant living liver donor fact sheet iver transplant after 2 organ transplants liver transplant trades 46 pound cystic liver life expectancy after liver transplant liver transplant in PLD? liver kidney transplant for polycystic liver combined kidney liver transplant for PLD liver transplant for PLD living donor liver transplant for PLD PLD liver useful for organ transplant? liver transplant for PLD PLD imaging for liver transplant surgical management of PLD pld liver transplant without end-stage liver disease first bloodless PLD liver transplant Jacksonville Mayo 1000th liver transplant liver transplant for pld liver transplant in patients over 70 liver transplant an option in PLD dual organ transplant both liver and kidney choose TAE article Intravascularembolization by Dr. Ubara Percutaneous transcatheter hepatic artery embolization Netherlands treating PLD TAE with absolute ethanol for PKD after failure colils