Changing to PKD Polycystic Kidney Diet has helped many feel better
PKD KIDNEY DIET
Plant based diet - water
1200 mg sodium Himalayan pink salt
0.6 grams protein/kg
3 liters water/ day or twice the amount of your output
PKD USEFUL FOODS
Acorn squash
Almonds
Apple
Apple juice (fresh)
Apricot
Arrowroot
Artichokes globe
Artichoke Jerusalem
Artichokes sunchokes
Avocado
Bamboo shoots
Banana
Barley *
Barley grass juice *
Beans green wax
Beef tea -distilled broth
Beet tops
Beet roots
Bok choy
Boysenberry
Broccoli sprouts *
Broccoli *
Burdock root
Cabbage
Cabbage juice
Carrots
Cauliflower
Chamomile
Chard
Cheese
Cherries
Chestnut
Chia seeds
Chia oil
Chicory
Chinese peas
Cream
Coconut
Coconut water young*
Collard greens
Corn meal
Corn on the cob
Cruciform vegetables
Daikon radish
Dairy
Dates
Delicata squash
DIMs (broccoli) *
Drumstick plant *
Edible flowers
Endive
Escarole
Garlic
Golden Delicious apple
Grape juice
Grapes
Grapefruit
Gravenstein apples
Greens leafy *
Guava
Hemp oil
Hempseed
Himalayan salt
Honeydew melon
Ice Cream
Jerusalem artichokes
Kale
Kiwi
Kohlrabi
Kumquats
Lettuce exclude iceberg
Lemon juice *
Lemon thyme
Limes
Linden flower
Loquat
PKD USEFUL HERBS
Artichoke
DIMs broccoli sprouts
Hibiscus
Linden flower
Nettle extract
Oregano
Parsley
Rooibos *
Rose hips
Saffron
Thyme
Veronica *
more on herbs
PKD POSSIBLE USEFUL MEDICINES
Lei Gong Teng Triptolide
Octreotide
Sirolimus
Tolvaptan
Water
|
PKD USEFUL FOODS continued
Mandarins
Mango
Melon
Melon juice
Millet
Mother's milk
Mulungai *
Mushrooms
Mustard greens
Myer lemon *
Nasturtiums
Nectarines
Nettle
Nettle leaf
Okra
Onions
Olive oil
Orange
Parsley
Parsnip
Passion fruit
Paw paw
Peach
Pear
Peas
Persimmons
Pineapple
Pomelo
Pumpkin
Quince
Quinoa
Radish *
Radish sprout*
Raspberry
Rhizomes
Rice syrup
Romaine lettuce
Rutabagas
Salsify
Sesame
Soba
Sorrel
Spelt
Squash
Summer squash
Sunchokes
Swedes
Sweet potato
Swiss Chard
Tahini
Tangerine
Tupelo honey
Turnips
Turnip greens
Ube
Water
Water chestnut
Watercress
Watermelon *
Watermelon seed tea *
Wheat grass juice
Wild rice
Winter squash
Yams
Yellow squash
Zucchini
BETTER CHOICES ANIMAL FOOD
Lamb
Fish flat white fish non oily
Cheese soft white cheeses (goat) cottage cheese or quark
Cultured dairy i.e. buttermilk, yogurt, plugra butter. Keep butter to less than a tablespoon per day.
| BETTER CHOICE |
TO REPLACE |
| Lamb |
Beef |
| Bean burger |
Hamburger |
| Haddock |
Salmon |
| OrangeRoughy |
Tuna |
| Perch |
Sardines |
| Cottage Cheese |
Parmesan |
| Goat Cheese |
Cheddar |
| Buttermilk |
Whole milk |
| Plugra cultured |
Butter |
| Yogurt |
Sour Cream |
* Foods in bold are especially useful. |
PKD AVOID FOODS
Alfalfa sprouts
Animal proteins
Aluminum
Ammonia
Anabolic steroids
Artificial sweetener
Aspirin
Beef
Bacon
Black tea
Blood dishes
Bluefish
Bologna
BPA
Bratwurst
Butter
Caffeine
Candy
Celery
Chaparral tea
Charred meats
Cheerios
Cheese
Chocolate
Cod liver oil
Coffee
Cola
Comet
Corn syrup
Cream
Creatine
Crisco
Croissant
Crustaceans
Dairy
DDT
De-caf chocolate
De-caf coffee
De-caf cola
De-caf tea
Donuts
Dry cleaning
Duck
Eel
Eggplant
Forskolin
French fries
Fructose
GM foods
Green tea
Ground meats
Hamburger
Hard cheese
Hot dogs
|
PKD AVOID FOODS
Iceberg lettuce
Lard
Licorice
Liver
Liverwurst
Lobster
Margarine
Microwaved food
Multiple vitamins
Nightshade
Nato
Noni juice
Paté foie gras
Peanuts
Pepperoni
Peppers
Pink meats
Plums
Potato
Potato chips
Powdered soaps
Quail
Rice wine
Rindswurst
Salami
Salmon
Salt pork
Sausage
Scallops
Scrambled eggs
Shell fish
Shrimp
Soy
Soy milk
Squab
Starfruit
Stevia
Strawberry
Sugar
Tamari
Tea
Tomato
Tuna
Turkey
Tylenol
Vegemite
Vinegar
Wheat
Wheat germ
White rice
Windex
White tea
Wine
Yeasted bread Yeast |
AVOID for all humans:
Peanuts
Aluminum
Candy
Potato chips
Lard
Margarine
French fries
PKD AVOID MEDS
Aspirin
Creatine
Caffeine
Ephedra
Glucosamine
Chondroitin
Lithium
NSAIDs
Paracetamol
Tylenol
NSAIDs
Phenacetin
Ibuprophen
Naproxn
Motrin
Alleve
PKD HERBS
Chaparral
Forskolin
Ginkgo biloba
Certain Chinese herbs, see Herbs. |
Why is Glucosamine and Chondroitin to be avoided?
It is made from shellfish and shark cartilage, these are high in copper and high in oxalates, which are detrimental to individuals with PKD. If one has an iodine allergy to imaging dyes, this may have a cross over allergy.
Completed GAIT clinical trials, a multi-center trial of 1500 individuals Glucosamine/chondroitin Arthritis Intervention Trial (GAIT), run for 24-weeks, concluded that Glucosamine and chondroitin sulfate alone or in combination did not reduce pain effectively in the overall group of patients with osteoarthritis of the knee. Analyses suggest that the combination of glucosamine and chondroitin sulfate may be effective in the subgroup of patients with moderate-to-severe knee pain must be confirmed by another trial. Another clinical trial of Glucosamine supplementation showed that it does not affect blood sugar in individuals with type 2 diabetes mellitus.
The American College of Radiologists concluded that there was a possible benefit in severe cases of knee osteoarthritis. Another comment from the NIH. Here
are two sources vegetarian glucosamine Freeda vegetarian
glucosamine Swanson vegetarian glucosamine.
Why are multivitamins to be avoided?
Unless prescribed for you by your physician, I would avoid multivitamin capsules or tablets. Multivitamins contain high amounts of copper. Researchers have noted that individuals who develop cancers have higher amounts of copper in their bodies. Additionally with multiple vitamins there are many of the fat soluble vitamins that can possibly cause an overdose of vitamins. It is best to supplement with individual vitamins such as B12,B6, folic acid, Vitamin C with rose hips and a few others if needed. Choose an all natural vitamin made from a food source so the micronutrients can be obtained. Juicing with nutrient dense calorie poor fruits and vegetables is especially good for the body.
When some take supplements or vitamins, they take the vitamins specifically needed rather than daily to allow the body to continue to manufacture its own vitamins such as B12 from the food. Certain vitamins if taken after 2pm, interrupt a restful night's sleep i.e. B vitamins. Some alternate months of vitamins following one month on, one month off regime.
A report has been released about caution with megavitamins: Unsafe Levels of Selenium Found in
Dietary Supplements
ROCKVILLE, Md.,
April 9 -- The FDA has identified hazardous levels of selenium as
the cause of 43 adverse events stemming from use of certain flavors
of the dietary supplements Total Body Formula and Total Body Mega
Formula. The distributor of the products, Total Body Essential Nutrition,
of Atlanta, has recalled the Tropical Orange and Peach Nectar flavors
of Total Body Formula in eight- and 32-ounce bottles and the Orange/Tangerine
flavor of Total Body Mega Formula in 32-ounce containers. |
PKD Diet Kidney
contains some
suggestions to try. These are gathered from our collective experiences - anecdotal knowledge. Each of us is unique with our own set of symptoms from various foods. Check which helps you. And check with your doctor to be sure that everything here might be beneficial. If something makes you feel better than utilize it. If something worsens, then lay it aside. Some of the foods are high in potassium. Others are high in phosphorus. Grapefruit interacts with many medications.
What is a diet that might keep kidney cysts from enlarging?
- Plant based diet
- Low salt
- 1200 mg sodium diet
- Neutral protein - 0.6 grams protein/kilogram of body weight
- Water
- Exercise and rest to increase kidney blood flow
- Eliminate kidney toxic foods, especially cystic kidney
• Plant based - diet that is alkaline producing within your own body. Some have reported an alkaline diet diminishes protein spillage in the urine; lowers blood pressure; corrects anemia, diminishes kidney cyst growth, and for some has resulted in an improved kidney functioning.
• Low salt - eliminate all canned goods, prepared foods, frozen dinners, fast food, salty snacks and take time to read sodium levels of purchased foods. Do not add salt to your own cooked foods.
Low salt - Daily place 1/8 of a teaspoon of Himalayan salt in a shaker. This amount of salt can be consumed daily. It can be used for seasoning, for baking, for any purpose. At the end of the day, the 1/8 teaspoon needs to be tossed and replenished with a new 1/8 teaspoon of Himalayan salt placed again into the salt shaker. Some have experienced by using Himalayan salt there is no change in blood pressure. A few adventurous have tried one drop of solé each morning in a glass of mineral water. To read about solé, click here.
Low salt - in a study patients were given either salt restriction or medication to control blood pressure. Individuals who restricted salt fared better.
• Neutral protein - Researchers calculated the amount of protein intake needed daily to keep the body in a neutral protein balance. That amount is 0.6 grams/kilogram. The formula is body weight divided by 2.2 then multiplied by 0.6. For instance if one weighs 110 pounds divided by 2.2 = 50 kilograms multiplied by 0.6 = 30 grams of protein is the protein intake needed to keep this body in a neutral protein balance. If one is eating an alkaline diet that keeps the urinary pH at or near 7.0, it is likely this individual is also in a neutral protein balance. For more information on protein click here.
• Water
- Drinking sufficient water to shut down vasopressin is thought to be a possible cure for PKD. A clinical trial for this is upcoming in NYC. To read more about water click here. The amount of water to raise urine osmolality equal to that of serum might be twice the urine output. For instance if one has 1500 cc output in 24 hours, then drinking twice that amount in water or 3000 cc or 3 quarts might be sufficient. We will have to wait for clinical trials to prove or disprove this.
• Exercise and rest to increase kidney blood flow - laying on the back or on the spine raises kidney blood flow. Certain blood medications also increases kidney blood flow.
• Eliminate kidney toxic foods - Avoid caffeine, coffee, chocolate, tea, white tea, green tea, de-caf teas, de-caf coffee, de-caf chocolate, (all stimulate cyclic AMP which causes cysts to grow and enlarge), aspirin, phenacetin, NSAIDs, Lithium, Starfruit, chaparral tea, and more. To read about herbs and foods click here.
AVOID ANIMAL PROTEINS or Limit the quantity of animal proteins to 3 ounces of meat or 1 ounce of dairy 2 times per week. . Keep portions small and have only occasionally - no more frequently than once a week. Medical articles have shown in normal individuals (those without cystic organs) there is a drop in kidney functioning when large portions of animal proteins are eaten. For a list of protein in some common foods, click here.
- ANIMAL PROTEINS
Some have been able to facilitate an increase in kidney functioning by eliminating animal proteins, (and potatoes), even with a previous decline. Maintaining alkalinity is imperative for individuals wishing longevity, but for PKD'rs it is imperative for health.
- LAMB - ANIMAL PROTEINS
Lamb has different molecular protein structure than beef. Beef or cows eat grasses that have the residual pesticides still present, long after these chemicals have been banned from farming. Beef cuts that are marbled are said to be the choicest. This marbling that makes the meat so tender is fat. Hormones are stored in the fat tissue and it is these hormones plus the chemicals from the grasses eaten from contaminated soil that is harmful.
- ANIMAL PROTEINS - BETTER CHOICES
If it is not possible for you to eliminate all animal foods there are some better choices than others:
non oily fish once or twice a month 2 ounces ;
lamb 3 ounces (one lamb chop) ;
cottage cheese (2 ounces) ;
plain yogurt with added acidophilus (a half a cup; open an acidophilus capsule and add the powder to this half a cup);
buttermilk cultured
skim milk 2 ounces max;
poached egg yolk once a month
| BETTER CHOICE |
TO REPLACE |
| Lamb |
Beef |
| Bean burger |
Hamburger |
| Haddock |
Salmon |
| OrangeRoughy |
Tuna |
| Perch |
Sardines |
| Cottage Cheese |
Parmesan |
| Goat Cheese |
Cheddar |
| Buttermilk |
Whole milk |
| Plugra cultured |
Butter |
| Yogurt |
Sour Cream |
| Poultry |
Wild game |
| Turkey |
Wild Turkey |
| Chicken |
Pheasant |
- FISH - ANIMAL PROTEINS
Fish - Enjoy flat white fish- that is non oily and low in fat. such as haddock, cod, orange roughy, and perch, For more examples of flat white fish click here. Avoid fish oil supplements. These are high in mercury. Also eliminate cod liver oil products by checking the ingredients lists in cosmetics, vitamins, and supplements. Avoid the following fish. The fat content is too high.
| AVOID fatty fish greater than 1% fat content. |
| Pollock |
1.0 |
| Grouper |
1.0 |
| Yellowfin Tuna |
1.0 |
| Snapper |
1.3 |
| Monkfish |
1.5 |
| Ocean Perch |
1.6 |
| Mackerel (King) |
2.0 |
| Halibut |
2.3 |
| Striped Bass |
2.3 |
| Smelt |
2.4 |
| Rainbow Trout |
3.4 |
| Swordfish |
4.0 |
| Bluefish |
4.2 |
| Catfish |
4.3 |
| Bluefin Tuna |
4.9 |
| Salmon |
6.3 |
| Albacore Tuna |
7.2 |
| Lake Trout |
9.4 |
| Chinook Salmon |
10.4 |
| Mackerel (Atlantic) |
13.9 |
| Chinook Salmon |
18.0 |
- DAIRY - ANIMAL PROTEINS to be avoided cheese, cream and ice cream
All put an extra workload on the kidneys. The solutes are too large for cystic kidneys to effectively filter. Dairy tends to dehydrate the body. Salt that is added to cheese and ice creams plus the extra large molecular solutes, plus the dehydration all can raise blood pressure and decrease kidney functioning. Some of us have experienced by taking a bite of ice cream or a sip of milk, this is followed by an episode of awakening in the middle of the night with a cotton mouth, an intense thirst that one feels as if their tongue is totally parched and their mouth is filled with many bits of cotton puffs.
We have experienced this from all forms of
dairy. Fish - Flat white fish- that is non oily and low in fat. Haddock, cod, orange roughy, perch, are examples of flat white fish. Avoid fish oil supplements. These are high in mercury. Avoid the following fish. The fat content is too high.
Fatty portions from animal proteins are much more harmful than the leaner sections, i.e. skim milk is preferable to cream. Limit fats to a maximum of one ounce per day. If one continues to eat meats and animal foods than any type of cheese needs to replace the meat for that day. The amount of cheese allowed is one ounce whereas the amount of lean meat is approximately three ounces once or twice a week.
Goat cheese is better than cow cheese, especially the type made in local farms and often sold at farmer's markets in the spring. Sometimes they make a salt free variety.
Cultured dairy is preferable i.e. buttermilk, yogurt, plugra butter. Keep butter fat intake to less than a tablespoon per day.
Less Harmful Cheese |
Cheeses best avoided |
Blue cheese |
Asiago cheese |
Blue veined cheeses |
Dry cheeses |
Cottage cheese |
Cheddar cheeses |
Enmenthaler |
Hard cheeses |
Feta salt free |
Mimolette cheese |
Goat cheese |
Mizithra |
Paneer |
Orange cheeses |
Quark cheese |
Kefalotyri |
Roquefort cheese |
Parmesan |
Swiss cheese |
Romano cheese |
Sheep cheese |
Reggiano |
Soft white cheese |
Yellow cheeses |
In addition to the proteins of dairy being particularly hard on cystic kidneys, the fats of animal proteins concentrate pesticides, DDT and other toxins. If you eat cheese try to find a type that preferably uses a vegetable rennet and is locally grown or organic, with grazing lands that are free of pesticides, hormones, chemicals.
Why is star fruit (Averrhoa carambola) to be avoided?
I have enjoyed the wonderful Hilo Big Island Farmer's Market eating in season star fruit and mango, a traditional combination. Then I discovered that starfruit is a known kidney toxin. Star fruit originated in Southeast Asia and is readily available worldwide.. It causes an array of symptoms in patients with chronic renal failure or end-stage renal disease. The symptoms vary and include insomnia, intractable hiccups, agitation, muscle weakness, confusion, consciousness disturbances of various degrees, seizures, and cardiorespiratory arrest. The various star fruit subspecies contain different toxins, including a powerful neurotoxin that is suspected to accumulate in blood, cross the blood-brain barrier in chronic renal failure patients, and eventually leading to irreversible damage.
Star fruit intoxication is a serious fruit intoxication frequently observed in patients with chronic renal failure.To date 2 PKD'rs have written about relatives succumbing to star fruit toxins. Because no effective treatment is currently available, patients— especially those who are newly diagnosed with chronic renal failure or end-stage renal disease—must be warned not to ingest star fruit, even in small amounts. Here is a study on a guinea pig heart, recommending that (star fruit) carambola extracts are to be avoided in individuals with normal or diseased hearts.
Why is Noni juice (Morinda citrifolia) to be avoided?
Hawaii is home to the growers of noni juice. Noni has had some cases of harm to kidneys according to the growers of noni juice. They suggested with my history of both kidney and liver disease, I avoid noni. Noni is very high in potassium and has been a cause of very high potassium levels. Lemon juice is a great flush, low in potassium, cheaper to obtain, and makes one alkaline .There are several cases in the literature that link noni to inflamed livers (hepatitis).
Hepatitis induced by Noni juice from Morinda citrifolia
Hepatotoxicity of Noni juice: report of two cases.
Acute hepatitis caused by Noni
|