Chronic PKD Pain
ADPKD Chronic Pain Trial Study Leader: Dr. Marie Hogan at the Mayo Clinic in Rochester Minnesota USA Conducting a clinical trial on chronic polycystic kidney pain. This study utilizes an interventional procedure known as Videothracoscopic Splanchnicectomy (VSPL) similar to Videothoracoscopic splanchnicectomy done for pancreatitis pain. If any have relentless PKD kidney pain or know of someone with severe PKD kidney pain, the Mayo Clinic is seeking participants.
Kidney Cyst Deroofing is another surgical procedure done for pain relief. There are a handful of surgeons throughout the USA who perform laparoscopic deroofing surgery of polycystic kidney cysts and polycystic liver cysts. There are dedicated operating suites for this. Deroofing is solely for pain relief. It does not make kidney functioning worse nor does it make it better. It does not affect liver functioning. Of those that are helped with their pain, almost all eventually have to repeat the procedure. One individual noted that her liver cysts came back with a vengeance. She experienced no pain relief. The amount of pain has nothing to do with cyst size or numbers of cysts. Decompressing the cyst and relieving the pressure on other organs does not always stop the pain. The response is very unique with each individual.