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Chronic Pain

Chronic Pain Trial Study Leader: Dr. Marie Hogan at the Mayo Clinic in Rochester Minnesota USA Conducting a clinical trial on chronic polycystic kidney pain. This study utilizes an interventional procedure known as Videothracoscopic Splanchnicectomy (VSPL) similar to Videothoracoscopic splanchnicectomy done for pancreatitis pain. If any have relentless PKD kidney pain or know of someone with severe PKD kidney pain, the Mayo Clinic is seeking participants.

Kidney Cyst Deroofing is another surgical procedure done for pain relief. There are a handful of surgeons throughout the USA who perform laparoscopic deroofing surgery of polycystic kidney cysts and polycystic liver cysts. There are dedicated operating suites for this. Deroofing is solely for pain relief. It does not make kidney functioning worse nor does it make it better. It does not affect liver functioning. Of those that are helped with their pain, almost all eventually have to repeat the procedure. One individual noted that her liver cysts came back with a vengeance. She experienced no pain relief. The amount of pain has nothing to do with cyst size or numbers of cysts. Decompressing the cyst and relieving the pressure on other organs does not always stop the pain. The response is very unique with each individual.

Acupuncture Useful for Chronic Pain

Acupuncture Does Help for Chronic Pain

Acupuncture provides more relief from various types of chronic pain than does usual care and should be considered a valid therapeutic option, the authors of a meta-analysis concluded.

Chronic Pain

Chronic pain is often seen in PKD and is a major cause of morbidity according to this 2012 article.

Chronic Liver Cyst Pain

Though most of these articles are about kidney pain, many of these same principals apply to liver cystic pain. We too are desperate for some type of pain relief. I have come to learn that for a few of us, a simple cyst drainage, when optimized for the individual and sand bags are used to allow the edges of the cyst to cling to each other and stillness for two hours following the procedure seem important details that lead to much needed pain relief.

Another to try is to shift the S-shaped pain curve more toward normal through the use of anti-depressant medications.

ADPKD is a rare disease but even rarer is ADPLD or liver cysts only. Until these diseases make it into medical text books, physician may continue to doubt the validity of our pain. Continue to let your doctors about any pain you experience. We should not have to endure chronic pain on top of the many symptoms from cystic organs. Let our collective voices be heard.

- select a CHRONIC PAIN article - TYLENOL acute liver failure Hibiscus helps thwart TYLENOL damage CHRONIC PAIN in ADPKD 2012 CHRONIC PAIN PKD management CHRONIC PAIN medication eases opiod constipation CHRONIC PAIN Pain Management in PKD CHRONIC PAIN Management CHRONIC PAIN Pain makes you old CHRONIC PAIN laparoscopic denervation CHRONIC PAIN surgical sympathectomy CHRONIC PAIN splanchnic denervation CHRONIC PAIN renal denervation adolescents CHRONIC PAIN management PKD CHRONIC PAIN Acupuncture Does Help for Chronic Pain SPLANCHNIC RELIEF clinical trial SPLANCHNIC RELIEF Thoracic nerves SPLANCHNIC RELIEF Thoracic nerves SPLANCHNIC RELIEF Opioid use SPLANCHNIC RELIEF NCPB VSPL SPLANCHNIC RELIEF Study SPLANCHNIC RELIEF NCPB, VSPL SPLANCHNIC RELIEF Videothoracoscopic ASPIRIN Cumulative intake GFR decline ASPIRIN abuse renal failure ASPIRIN adverse effects low-dose ASPIRIN abandon w/o ASVD disease ASPIRIN use with transplants DEROOFING PLD 6 yr New Zealand DEROOFING PLD gas-less DEROOFING PLD gas-less abstract DEROOFING PLD Re-expansion Liver Cyst DEROOFING PLD Dr. Valente DEROOFING PLD Radiological therapy DEROOFING PLD Mini-invasive approach DEROOFING PLD Sclerotherapy DEROOFING PLD Ethanol sclerosis DEROOFING PLD Cyanoacrylate glue sclerosis DEROOFING PLD Sclerosis not definitive therapy DEROOFING PLD Liver Cysts HVOO DEROOFING PLD Serial ablation alt to transplant DEROOFING PLD Long term results DEROOFING PLD Laparoscopic fenestration simple cyst DEROOFING Laparoscopic denervation DEROOFING Laparoscopic decortication DEROOFING Minimally invasive surgically DEROOFING Laparoscopic cyst fenestration DEROOFING Laparoscopic hepatic cyst DEROOFING percutaneous sclerotherapy DEROOFING Hepatic Cysts DEROOFING Surgical PLD Management DEROOFING Ethanol Ablation DEROOFING not definitive therapy DEROOFING Glue for Sclerosis DEROOFING percutaneous sclerotherapy NSAIDs in Chronic Kidney Disease NSAIDs prolong the bleeding NSAIDs: analgesic-associated nephropathy NSAIDs analgesic-induced kidney disease NSAIDs Analgesic Kidney Disease NSAIDs Causes of Kidney Disease? NSAIDs pain management renal or hepatic NSAIDs Harm Reduction Conf NSAIDs analgesic Kidney Disease NSAIDs Analgesic renal failure NSAIDs Cardiovascular Risk NSAIDs analgesic-associated nephropathy PAIN RELIEF suggestions PAIN RELIEF laparoscopic denervation PAIN RELIEF Thoracic splanchnic nerves PAIN RELIEF surgical sympathectomy PAIN RELIEF Patient’s Manual PAIN RELIEF Pain Management S-shaped Pain Curve PAIN RELIEF Minimally Invasive Surgery PAIN RELIEF Acute renal hepatic PAIN RELIEF Pain Management PAIN RELIEF Hepatic Cysts sclerotherapy PAIN RELIEF Glue for Sclerosis PAIN RELIEF Laparoscopic Fenestration PAIN RELIEF acute management PAIN RELIEF in PKD PAIN RELIEF Volume Progression PAIN RELIEF Glucosamine Chondroitin SPLANCHNIC RELIEF clinical trial SPLANCHNIC RELIEF Thoracic nerves SPLANCHNIC RELIEF Thoracic nerves SPLANCHNIC RELIEF Opioid use SPLANCHNIC RELIEF NCPB VSPL SPLANCHNIC RELIEF Study SPLANCHNIC RELIEF NCPB, VSPL SPLANCHNIC RELIEF Videothoracoscopic SCLEROTHERAPY Ethanol Ablation SCLEROTHERAPY not definitive therapy SCLEROTHERAPY Cyanoacrylate Glue SCLEROTHERAPY Laparoscopic SCLEROTHERAPY percutaneous SCLEROTHERAPY Laparoscopic denerve SCLEROTHERAPY Mini Invasive Surgery

• PKD Pain
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We are  sharing our experiences with PKD/PLD Diet, an adjunct diet envisioning it complementing a physician's prescribed medical therapy. Consider testing this with your doctor's prior knowledge, who can  adjust it according to your own uniqueness by adding it to your current  treatment.

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