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Aneurysm Rupture in ADPKD
Aneurysm Recurrence aneurysms ADPKD

COFFEE CAFFEINE

Researchers looking at coffee oils for a cause of gallstones found to be from eating tamarind fruit.
Cafestol Coffee oils raise cholesterol especially triglycerides LDL HDL. This is reproducible in healthy individuals. 2005
Coffee bean extracts kahweol elevate liver enzymes in healthy individuals. 2004
Coffee - Association Parkinson's and coffee
Caffeine - Abstract - Chronic consumption exacerbates hypertension in PKD rats
Caffeine - Full article - Chronic consumption exacerbates hypertension in PKD rats
Coffee - Caffeine increases kidney stones formation.
Caffeine's effect on PKD stimulates cyst growth triggers C-amp. Rapidly can lead to decline in kidney functioning.
Coffee PKD stimulates cyst growth PKD kidneys by stimulating C-amp.
Coffee stimulates bad cholesterol NY times article
BP Caffeine- Habitual caffeine intake and risk of hypertension in women
Coffee caffeine alters signaling to the heart ADPKD cardiomyocytes
Coffee caffeine alters smooth muscle calcium stores vascular phenotype in PKD Torres.
Caffeine increases excretion of minerals for 3 hours contributes to a lessening bone density.
Decaffeinated' Coffee May Be Anything But

BLOOD PRESSURE

Blood Pressure Folate intake hypertension in women
Blood Pressure Children BP earlier better outcome
Blood pressure article by Dr. Schreir 2004.
Blood Pressure Evidence for tight BP control
Blood Pressure Optimal care of ADPKD
Blood Pressure Early diagnosis less complications
Blood Pressure ADPKD in infancy outcome
Blood Pressure PKD earlier diagnosed better outcome.
Blood Pressure HALT study brochure
Blood Pressure Angiotensin ADPKD 2004
Blood Pressure Grape juice lowers blood pressure
C-Reactive Protein Who should be tested and measured
C-Reactive Protein risk assessment in cardiovascular disease

POTASSIUM CITRATE

Potassium Citrate diminishes PKD cysts
Potassium Citrate improves renal function PKD animal
Potassium Citrate Dietary treatment of PKD in rats
Potassium Citrate Polycitra-K prescribing info
Potassium Citrate Tanner, G, a bio publications
Potassium Citrate Urocit K prescribing info
Potassium Citrate Urocit contraindications
Potassium Citrate PCY mouse not harmed
Potassium Citrate delays kidney disease Dents disease.
Potassium Citrate prevents future kidney stones.
Potassium Citrate helps improve bone loss.
Potassium Citrate helps improve health on a acidic diet.
Potassium Citrate helps lower blood pressure.
Potassium Citrate helps prevent kidney stones
Potassium Citrate helps eliminate stone formation
Potassium Citrate helps eliminate surgery new stones
Potassium Citrate Helps with candidiasis infections.
Potassium Citrate Oregano alkaline best candida thrush.
Potassium Citrate Low urinary citrate correlates increase BP
Potassium Citrate Trial
Potassium Citrate added to cat food.
Potassium Citrate Improves prolonged intermittent sprint
DIET Raw vegan low fat vegan diet improves weight loss
DIET Raw vegan have improved bone strength
DIET Vegan low in phosphates confers protection
DIET Raw vegan favorable cholesterol, LDL markers.
DIET Raw vegan healthy for individuals
DIET Vegan dogs longevity with less disease
DIET vegan low cost treatment for maintaining kidney health.
DIET Nutritional breakdown of some foods
DIET Nutrition Dialysis cookbook
DIET Nutrition Long John silver fast food
DIET SAVING FAILING KIDNEYS
NANOBACTERIA activated by light.
NANOBACTERIA Inhibition by antimicrobial drugs
NANOBACTERIA Endotoxin PKD

ESSENTIAL AMINO ACIDS

EAAmino Acids COPING WITH KIDNEY DISEASE
EAAmino Acids low protein diets Mackenzie Walser
EAAmino Acids Listing of published papers by Walser MD.
EAAmino Acids Preparation renal replacement therapy
EAAmino Acids Effect ketoconazole on renal failure
EAAmino Acids low protein diet pre-dialysis
EAAmino Acids Can renal replacement be deferred by VLPD?
EAAmino Acids Nutrition outcome chronic renal failure
EAAmino Acids Treating uremia with essential amino acids
EAAmino Acids Randomized double blind trial amino acids
EAAmino Acids useful in allograft by J F Valente
EAAmino Acids Bibliography amino acids
EAAmino Acids Essential amino acids spec sheet by Gambro
EAAmino Acids Saving Failing Kidneys
EAAmino Acids Randomized trial evaluate pre-dialysis
EAAmino Acids Supplemented low protein safe
EAAmino Acids Antioxidant effects low protein Diet
EAAmino Acids Nephrology in China - Lin
EAA ACE - Pentoxiflylline CRF- Lin
EAA ACE - Losartane ESRD - Seng
EAA Avoid beer wine potatoes tomatoes strawberries cream with PKD
EAA - Foods to avoid on very low protein diet

IMAGING STUDIES

IMAGING uptake unreliable index
IMAGING panic disorders treated antidepressants
IMAGING virtual colonoscopy
IMAGING Gadolinium NFD
IMAGING Gadolinium FDA Alert
IMAGING MRI renal blood flow indicator PKD
IMAGING CRISP study
IMAGING renal structure PKD
IMAGING vol progression PKD
IMAGING CRISP Dr. Grantham
IMAGING Breast MRI high risk women
IMAGING Breast cancer decrease
IMAGING Aneurysm rupture ADPKD
IMAGING Aneurysm Recurrence

KIDNEY CYSTS

PKD Cipro Achilles Tendon damage rats
PKD slides from a lecture on ADPKD
PKD Extrarenal manifestations of ADPKD part 1
PKD Extrarenal manifestations of ADPKD part 2
PKD Extrarenal manifestations of ADPKD part 3
PKD Forskolin google search cyst contents
PKD Genetics PKD part 1 of 3
PKD Genetics PKD part 2 of 3
PKD Genetics PKD part 3 of 3
PKD Role of Phosphate parathyroid hormone
PKD Basics of PKD part 1
PKD Basics of PKD part 2
PKD Audio tape Basics of PKD listen
PKD Audio tape Controlling blood pressure listen
PKD1 and PKD2 differences
PKD2 discussion about incidence in Czech population
PKD Nanobacteria an emerging PKD infection
PKD Heart Transplant reversed
PKD Basics listen
PKD Blood pressure listen to lecture
PKD Cipro
PKD Dialysis listen to lecture
PKD Dialysis peritoneal
PKD Extrarenal PKD1
PKD Extrarenal PKD2
PKD Extrarenal PKD3
PKD Forskolin google search cyst contents
PKD GAIT study knee pain
PKD Chondroitin and the GAIT study
PKD Genetics PKD1
PKD Genetics PKD2
PKD Genetics PKD3
PKD Melatonin avoid immunosuppressive agents
PKD Nanobacteria
PKD Patient's Manual
PKD Phosphates role
PKD Potassium nutritional content
PKD Potassium dialysis cookbook
PKD Potassium Long John Silver
PKD 1 - PKD 2 differences
PKD Slides PKD
PKD Reversed heart transplant
PKD Transplant stem cell research Gulf India
PKD Transplant swapping listen
PKD Transplant understanding listen

PKD Transplant vs Dialysis Australian experience
PKD Transplant bone loss and kidney disease

ARTICLES PLD - LIVER CYSTS

PLD How to diagnose
PLD gene for ADPLD
PLD lecture 2004 Dr Torres
PLD researcher Dr. Somlo
PLD lecture part one Dr. Perrone 2001
PLD lecture part two Dr. Perrone 2001
PLD treatment hepatic artery ablation
PLD liver resection
PLD liver resection when symptomatic
PLD Mini invasive approach
PLD liver resection Chinese experience
PLD liver resection treatment of choice
PLD liver resection Alberta hospital
PLD liver resection Mayo Dr. Nagorney
PLD liver resection 1995 Dr. Nagorney
PLD liver resection insurance helpful
PLD liver resection Netherlands experience
PLD Netherlands experience
PLD Transplant Rapid Liver Donor workup-Altruism higher
PLD Transplant Altruistic donors needed
PLD Transplant Liver Florida 1000th transplant
PLD Transplant Liver transplants over 70
PLD Transplant man moves to Florida for liver
PLD Transplant Anti-viral CMV prior to transplant
PLD Transplant USC world's first bloodless transplant
PLD Transplant guidelines living donor transplant
PLD Transplant LA Mom dual transplant children
PLD Transplant A bloodless Coup
PLD Transplant After two organ transplants robotics
PLD Transplant Helpful insurance
PLD Transplant Traded 46 pound cystic liver
PLD Transplant Altruistic donors needed
PLD Herbs Milk Thistle useful
PLD Herbs effects on liver disease
PLD Herb Artichoke liver protector
PLD Herb Saffron liver
PLD Herb various alkaline
PLD Herb alternative
PLD Estrogen Mimickers Phthalates toxic beauty products
PLD Estrogen Mimickers Maca contains hormones
PLD Increases estrogen metabolism DIMs broccoli sprouts
PLD Help Tests - Interpreting Liver detox profile
PLD Help Hot Flashes black cohosh not helpful
PLD Help Hot Flashes Effexor helpful
PLD Help Hot Flashes MPA poses risk
PLD Decline 7% Breast Cancer with less HRT
PLD Help Bentonite Clay
PLD Help Proton Pump Inhibitors risk hip fractures
PLD Help H2 Blockers differences
PLD Liver harm NSAIDs
PLD Liver harm from Chlorine
PLD Liver harm Chlorine Italian study Carp livers
PLD Liver harm Chlorine water genetic mutation
PLD Octreotide Bergamo Italy Safety PKD
PLD Octreotide Liver ascites
PLD Octreotide analogues neuroendocrine tumors.
PLD Orthostatic Hypertension helped
PLD
Octreotide prevents portal pressure after a meal
PLD Octreotide pancreatic injuries adjunctive role
PLD Octreotide slow the growth of renal cysts?
PLD Octreotide research page 18
PLD Octreotide Prescribing Long Acting
PLD Octreotide Prescribing short acting
PLD Octreotide used in Acromegaly.
PLD Octreotide more information LAR
PLD researcher Dr. Hogan on Octreotide PLD
PLD Octreotide Clinical Trial info
PAIN RELIEF

Pain Laparoscopic denervation by John F Valente MD
Pain Laparoscopic denervation by Chang
Pain Management Torres MD
Pain GAIT study osteoarthritis knee pain
Pain Chondroitin GAIT study knee pain

Pain treatment with liver and kidney disease
Pain Gabapentin in patients with the pruritus
Pain deroofing Sultan Qaboos University
Pain Laparoscopic nephrectomy 35 pages
Pain China laparoscopic fenestration cysts
Pain Cyst aspiration fenestration recur 75%
Pain Ethanol Hepatic Cysts alt Liver Tx
Pain splanchnic pain South Africa
Pain splanchnic pain UK
Pain TYLENOL acetaminophen-induced liver toxicity in rats
Pain TYLENOL kidney function in elderly
Pain TYLENOL Combination analgesic-induced kidney disease
OCTREOTIDE IN CLINICAL TRIALS

Octreotide animal model reduces liver cysts full article
Octreotide animal studies abstract
Octreotide Clinical Trial
Octreotide more on Mayo Clinical Trial
Octreotide Bergamo Italy Octreotide Clinical Trial
Octreotide Safety and efficacy - helps reduce kidney cysts
Octreotide
Octreotide helps Weight loss
Octreotide helps Orthostatic hypotension
Octreotide helps Ascites
Octreotide helps increased portal pressure after meal
Octreotide Acromegaly articles
Octreotide LAR
Octreotide short acting IV Rx
Octreotide Sandostatin LAR
Octreotide Grantham MD
Octreotide enhances immunosuppressive
Octreotide decreases cyclosporin concentration
Octreotide pancreatic neuroendocrine tumors
Octreotide pancreatic injuries adjunctive role
Octreotide Hepatic artery Portal vein reconstruction
Octreotide PCK rat (ARPKD) and liver cyst development
Octreotide Biliary Dysgenesis ARPKD
Octreotide Intrahepatic bile duct transport
Octreotide Human Liver Stem Cells: Recent Developments
PLD LISTEN TO LECTURE

PLD polycystic liver listen to taped lecture on PLD.
PKD RESEARCH

RESEARCH update 2006 PKD conference
RESEARCH CRISP MR measurement of disease severity
RESEARCH CRISP Cyst number but not rate of growth associated with PKD1 or PKD2
RESEARCH CRISP Cyst number but not rate of growth associated with PKD1 or PKD2 abstract
RESEARCH CRISP Abstract about CRISP study
RESEARCH CRISP Article by Dr. Grantham
RESEARCH CRISP Imaging Progression
RESEARCH CRISP ADPKD major factor in outcome
RESEARCH CRISP MRI provides early alert progression
RESEARCH CRISP volume progression in PKD
RESEARCH HALT physician brochure
RESEARCH HALT brochure
RESEARCH Rapamycin slows down PKD
RESEARCH Rapamycin Discovery
RESEARCH Rapamycin mTOR pathway in PKD
RESEARCH Rapamycin 4 cases at University of CA
RESEARCH Rapamycin University of Zurich
RESEARCH Rapamycin Story of reversal transplant
RESEARCH Octreotide Italian Clinical Trial where it began
RESEARCH Octreotide Liver ascites
RESEARCH Octreotide analogues neuroendocrine tumors.
RESEARCH Orthostatic Hypertension in the elderly helped
RESEARCH
Octreotide prevents portal pressure after a meal
RESEARCH Octreotide pancreatic injuries adjunctive role
RESEARCH Octreotide slows growth of renal cysts?
RESEARCH Octreotide page 18
RESEARCH Octreotide Prescribing Long Acting
RESEARCH Octreotide Prescribing short acting
RESEARCH Octreotide used in Acromegaly.
RESEARCH Octreotide more information LAR
RESEARCH Octreotide Clinical Trial

RESEARCH Tolvaptan abstract Torres MD
RESEARCH Tolvaptan Effectiveness vasopressin
RESEARCH Tolvaptan Inhibits renal cyst
RESEARCH Tolvaptan full article Torres MD
RESEARCH Tolvaptan fast track granted by FDA
LISTEN TO THESE LECTURES

PLD POLYCYSTIC LIVER by Dr. Vicente Torres. An exceptional tape on the most recent advances and hope for the future about polycystic liver disease. Included in this lecture is the study on Octreotide from Bergamo Italy.
UNDERSTANDING DIALYSIS by Dr. Amy Williams is the best dialysis lecture I have ever heard. It took the fear out of dialysis for me. I came to understand that with daily or nightly dialysis individuals could function as energetic beings, feeling much better than even before starting dialysis; lecture number 17.
TRENDS INNOVATIONS LIVING DONOR TRANSPLANT Dr. Robert Montgomery At Johns Hopkins University Living organ swapping with a more compatible recipient minimizing transplant rejection
UNDERSTANDING TRANSPLANT Dr. F. Kosio Life expectancy is prolonged through transplant vs. dialysis
HYPERTENSION Dr. Torres
RESEARCH UPDATE Dr. Perrone 2006 PKD conf.

FROM A FEW ARTICLES

Children when diagnosed before 18 months with ADPKD have better outcome to children diagnosed later in life. A long held belief has been that the earlier the diagnosis of PKD, kidney decline would come sooner. A recent article by Dr. Perrone points out that the earlier the diagnosis the better the prognosis. Doctors are discovering more and more it is early treatment and early control of blood pressure and spilling protein in the urine that will positively affect the health of cystic kidneys.
Blood pressure control held tightly around 100/70 - 110/80 has the best chance for longevity of healthy PKD kidneys. PKD'rs can follow their blood pressure and protein in the urine, and urinary pH with Dipsticks.
Potassium Citrate in animal studies alkalinity was the main factor diminishing kidney cysts. Clinical trials have shown Potassium Citrate's effectiveness in lowering blood pressure. Low urine citrate correlates with high blood pressure. It is ideal to maintain alkalinity early with the diagnosis of cystic organs. As PKD progresses it becomes mandatory to maintain alkalinity. Anything we can do to halt this progression is a flying leap toward health- pH testing papers.
Nanobacteria is it a possible hidden culprit increasing the formation of kidney cysts, kidney stones, liver cysts and cholesterol build up? This article points to potassium citrate or alkalinity successful in halting nanobacteria.
Caffeine - coffee, diet colas, sugared colas, de-caf, chocolate all increase cyst growth. An incidental important finding is that caffeine induces weight gain. Caffeinated drinks are acid producing. Ideally we with PKD should eliminate all caffeine. If you cannot do without caffeine, than flood the body with water eliminating the caffeine through the urine.
Move over Tolvaptan, included in upcoming clinical trials are a number of new not yet released medications for clinical trials-Octreotide, Rapamycin, Potassium Citrate, VLPD, all show diminished cyst growth. Armed with this new arsenal of possible treatments we can nudge that doorway to health so it is wide open.

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last updated: Sunday, May 13, 2012 11:42 AM