We PLD'rs are a very stoic group of individuals and often wait until a low level of chronic pain exists before seeking help. Once the pain becomes chronic, relief may become so severe that opiods, such as fentanyl patches or vicodin are needed for relief. This can allow us to function on a daily basis. There is a procedure called a splanchnic denervation. This is done laparoscopically, and performed by a thoracic surgeon. It is available at centers throughout the world. Pain is a commonly reported symptom from polycystic liver disease. Another symptom is bloating, distension, and early satiety all from an ever growing cystic liver.

36.6% experienced pain
9.6% had difficulty breathing
9.6% restricted mobility with hepatomegaly
45% 62.3% female
37.7% male
71.7% had PKD
mean age at diagnosis 56.4 years