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The chief PLD symptom is the appearance of a huge mass from an enlarging liver. It is possible for this to grow as large as 40 pounds exerting a constant slow direct pressure against many internal organs. We can look as if we are very pregnant or have a huge beer belly.
PLD'rs are a very stoic group oftentimes waiting until a low level of chronic pain exists before seeking help. Once the pain becomes chronic, relief may come in the form of opiods, such as fentanyl patches or vicodin. These pain relievers, allow us to function. There is a procedure called a splanchnic denervation. This is done laparoscopically, and performed by a thoracic surgeon. It is available at centers throughout the world.
Pain is the most commonly reported symptom from PLD polycystic liver disease. Another symptom is bloating, distension, and early satiety all from an ever growing polycystic liver.
In a recent study of PLD'rs:
36.6% experienced pain
9.6% had difficulty breathing
9.6% restricted mobility with hepatomegaly
45%
62.3% female
37.7% male
71.7% had PKD
mean age at diagnosis 56.4 years
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acid stomach |
back pain |
bleeding into cysts |
bloating |
bones break |
candidiasis - yeast |
cardiac compression |
clots pressure against vessels |
collapse lung |
compression bile ducts |
compression inf vena cava |
craving for sweets |
difficulty breathing flat |
discomfort fullness |
distortion of ribs |
disturbed sleep |
early satiety |
eating only cupful food |
emaciated |
fat loss - low body fat % |
fatigue |
fluid in the lung/heart |
fractured ribs |
gas - pain |
gaunt scrawny |
headache |
hemorrhoids |
hungry -cannot eat volumes of food |
HVOO |
inability to sleep flat |
infected liver cyst -pain |
itchy skin |
liver cyst infection pain |
look pregnant beer belly |
mass effect on all organs |
massive belly huge liver |
massive liver size 40kg |
matted spider telangectasias |
muscle wasting |
nausea |
pain |
pericardial effusion |
poor appetite |
rapid bowel transit time |
reduced platelets |
reflux |
rupture of liver cyst - pain |
shortness of breath |
spider veins |
skinny upper body |
sleep difficult |
stomach compression |
swelling of legs feet |
tiredness 40 kg liver |
unable to walk very far |
uterine prolapse |
varicose veins |
vomiting |
weight gain-multiple fluid filled cysts |
yeast infection |
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