A search of medical research articles written by Dr. Torres will reveal much of the major research
on Polycystic Liver Disease. If there is a question or if you should need a liver
resection, a liver transplant, a TAE, or conservative medical treatment for
liver cysts, this is the physician to turn to. He has numerous published
articles on cystic organ disease, particularly PLD Polycystic Liver Disease. One article is about animal studies with sirolimus to reduce
liver cysts. Click here to listen to a PLD lecture by Dr. Vicente Torres given June 15, 2004 at the PKD conference. Dr. Vicente Torres past chair of scientific advisory committee for PKD Polycystic Kidney Disease. He has stepped down as the longest standing member of the scientific PKD advisory committee for the past 12 years. Dr. Torres is a Professor of Medicine and Chair of Division of Nephrology at the Mayo Clinic Rochester MN USA. He has authored many PLD research projects. Listen to this lecture now by Dr. Vicente Torres given June 15, 2004 at the PKD conference. Dr. Vicente Torres past chair of scientific advisory committee for PKD Polycystic Kidney Disease. He has stepped down as the longest standing member of the scientific advisory committee for the past 12 years. David M Nagorney, MD, Mayo Clinic, Rochester, MN. We are awaiting his latest paper, Liver Resections for PLD Polycystic Liver Disease, the Mayo Experience - A long term follow-up. This paper has been accepted for publication. Dr. Nagorney was the first surgeon to suggest a liver resection might be helpful for PLD Polycystic Liver Disease. He is a liver resection surgeon, devoting himself exclusively to performing liver resections. If one is a candidate for a liver resection, this is the man to perform it. Peter C. Harris, PhD ADPLD
Genetic Study If you have only liver cysts without any kidney cysts, it is likely that you probably
have ADPLD, autosomal dominant polycystic liver disease. For individuals without kidney cysts
and only liver cysts, there is an ongoing genetic study from the Mayo with Dr.
Peter Harris and Dr
Torres and together with Yale University. Email with any questions.
S. Somlo, MD bio ADPLD
Genetic Study does gene phenotyping of ADPLD.
This requires a donation of a test tube of your blood. It does not require travel.
They can mail the kit to you and you mail it back in a pre-paid envelope. Email with any questions.
Dr. Drenth in the Netherlands has begun lanreotide clinical trials in Europe. Department of Gastroenterology and Hepatology, Radboud University Medical Center, Nijmegen, The Netherlands
Hogan MD, Mayo Clinic, Rochester, MN: Dr. Hogan is currently heading up clinical
trials on Octreotide and chronic long term pain from
PKD. The latest project will research the evaluation
and treatment of chronic Pain in ADPKD. PKHDL1, a homolog of the autosomal recessive polycystic kidney disease gene The
gene mutated in autosomal recessive polycystic kidney disease encodes a large,
receptor-like protein. Click here to view PKD slides presented by Dr. Marie Hogan on June 23, 2008.
Page 8 shows a photo of a normal liver and a polycystic liver.
Page 12 is a female with severe PLD.
Page 15 shows imaging studies to isolate a liver cyst infection.
Page 17 are surgical treatment options.
Page 26 shows how the MELD score is rated for a liver transplant.
Page 28 are alternative treatment options for PLD.
Page 29 shows stenting for inferior vena cava obstruction
Page 30 are images from Dr. Ubara and the TAE procedure performed.
Page 48 nonsurgical treatment options
Page 43 octreotide treated livers and non octreotide livers
Dr. Ubara in Japan has perfected the TAE procedure for severe PLD polycystic liver disease.Department of Radiology, Toranomon Hospital Kajigaya, Kawasaki, Kanagawa, Japan.
Masyuk MD, Mayo Clinic Rochester MN USA. In this study, the treatment of PLD Polycystic Liver Disease will be explored. Octreotide
article by Dr. Masyuk.
Thursday, August 25, 2011 5:42 PM