HELPFUL LINKS

ARTICLES
BOOKS
cookbooks
recipes
useful
FOOD
Blueberry Cranberry
Bread non yeasted
Mulungai
Parsley
Garlic
Saffron
Salt Himalayan Pink crystal salt
Spelt flour
Tupelo honey
Thyme
HERBS
INTERNET GROUPS
Topica PKD PLD
Polycystic LIght
Liver cysts
LISTS
alkaline foods
useful kidney cysts
useful liver cysts
PKD
kidney failing - what can I do?
Kidney function calculators
creatinine calculators
protein calculators
potassium foods
phosphorus foods
sodium foods
kidney functioning good -what can I do?
Is blood pressure control important?
PLD
Octreotide
Altruistic liver donors
Where to go for a liver resection?
Where to go for a transplant?
SUPPLIES
creatinine calculator
dietary software
laboratory tests
pH testing paper (urinary pH)
protein calculator
urine protein testing paper (proteinuria)
SUPPPLEMENTS
Calcium citrate
Essential Amino Acids
Milk Thistle plus
Magnesium Citrate
Omega 3's essential fatty acids
hemp seed
Potassium Citrate
VITAMINS
vitamin b6 b12 folic acid
vitamin b2
vitamin b1
vitamin c rose hips
vitamin e
iron

SUPPLIES Links
Creatinine Converter
Creatinine Calculator another
Creatinine Calculator one more
Diet Sleuth dietary software with a free trial for 30 days. Useful for both windows and mac computers. It will calculate your daily potassium, protein, fats, carbs, phosphorus, calcium, magnesium, calories and more. It will give a weekly or monthly graph chart and you can add recipes to it of your favorite food.
Laboratory tests and understanding them.

PH PAPER
For testing the pH of urine in the evenings, pH Stix Alkalive is the easiest to use. The cost for the dipstix is a bit more than pH paper on a roll. The color chart is a double range of colors from yellow when acid, green neutral and blue when alkaline. 80 strips are about 2 for $12.72.

The pHydrion Vivid strips, one tears off a piece from a paper roll. These are easy and less expensive than the Alkalive pH dipstix. Order No. 067 with a pH 5.5-8.0 Vivid for $6.50.

Email Micro Essential Lab for pH papers on a roll. Ask for the refills for #067 with a range of 5.5 to 8.0. It measures in increments of 0.2 pH. The price is 3 rolls for $20 or $50 for 10 rolls. This is a very long roll that will last about 3 months or more.
PROTEIN TESTING PAPER - ALBUSTIX For checking for urinary protein albustix are available 100 for $27.99 through Canada. There are also some available in the UK 50 stix for about $13 or £ 6.50 from Westons.
Creatinine Clearance Calculators
Creatinine Clearance another
Creatinine Clearance one more
Protein Calculator for daily intake.
Phosphorus foods a listing of 999.
The ancient art of bentonite clay baths helps remove toxins.
Vitamin D or how to get this vitamin from walks in the sunshine.

SUPPLEMENTS
IRON LIQUID HERBAL - IRON Floradix or liquid iron with herbs by Salus-Haus. A few are taking this form of iron and have discovered it does not cause any constipation. For about iron Floradix written in German (the manufacturer) click here. For more on why a liquid is more readily absorbable, click here. Check with your doc about prescribing iron. It needs to be taken with vitamin C to activate (rose hips all natural) and milk and calcium will de-activate. If one is taking cream of wheat cereal with iron, the iron absorption will be lost if milk is added to the cereal

ESSENTIAL AMINO ACIDS - EAA
EAA Calwood This is their homepage. Calwood makes a mixable powder containing 8 essential amino acids.Type in the word Nutrasentials. This will take you to the order page. The powder mixes up with water cherry, grape, or orange. It does contain artificial sweetener to make it more palatable.The candy tastes a bit like play dough with artificial flavors.
Calwood Nutritional's, Inc.
5331 Landing Road
Elkridge, MD 21075
(800)479-9942
(410)796-5560
(410)796-7559 fax
EAA Gambro makes tablets of amino acids. It says on the package to take ten daily with meals, but Dr. Walser recommends 15. Made for kidney patients, these pills are easy to swallow with a small amount of water. Download Gambro amines specification sheet and published article on their use. Aminess N, is the essential amino acid supplement product that GAMBRO offers. To place an order, please call GAMBRO toll free at 1-800-651-2623. The price is $65.00 for a bottle of 300 tablets.

Both Calwood and Gambro have the same nitrogen poor amino acid supplements used by Dr. Mackenzie Walser in his clinical trials. Several individuals willing to stick with his diet were successful in stopping malnutrition, raising serum albumin, lowering creatinine, eliminating anemia, and improving kidney functioning. This 22 gram protein diet is supplemented with amino acids, zinc and iron (if you take iron, take vitamin C with rose hips so 50% of the iron is not eliminated in the gut). Low serum albumin, usually an indicator of malnutrition, came back to normal limits by decreasing protein intake to 0.3 grams per kilogram of body weight. COPING WITH KIDNEY DISEASE, eliminates all animal proteins as well as some high protein, high phosphorus, high nitrogen and high potassium vegetables. These are a few articles.
22 Gram Protein Diet for delaying dialysis M Walser MD
Chronic Renal Failure low protein diet outcomes
Saving Failing Kidneys.

ESSENTIAL FATTY ACIDS - EFA
EFA - Hemp seed meal, butter, and oil for omega 3's.Hemp oil contains more EFA Essential Fatty Acids than flax. It is free of potential toxic contaminants commonly found in fish oil supplements. It also provides the perfect 3:1 EFA balance. There are organic hemp seed oil caps from Canada. I have found hemp seed to be the essential fatty acids that does not cause pains or increase in abdominal girth. Both fish oil and flax seed oil cause pain and cyst expansion and are to be avoided. Omega 3's Hempseed oil caps is useful for the daily intake of essential fatty acids.

INTERNET SUPPORT GROUPS If you wish an invitation send an email
PKD DIET SUPPORT GROUP has archives readable by anyone. JOIN by sending an E-mail to pkd-subscribe@topica.com
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POLYCYSTIC LIVER DISEASE SUPPORT
JOIN send an email to:
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POLYCYSTIC LIGHT  the non medical side of cystic organ disease
JOIN Polycystic Light send an email.
POST Polycystic Light pkd@groups.mac.com
READ Polycystic Light messages http://groups.mac.com/pkd

BOOKS Cookbooks
Bread Alone by Daniel Leader This has many recipes for non-yeasted spelt breads.
The Greens Cookbook by Deborah Madison (a favorite cookbook that I am constantly reaching for.) I enjoy her cookbooks immensely. She encourages the reader to make use of readily available ingredients substituting if you are unable to find a particular item. The salads are delicious.
Vegetarian suppers from Deborah Madison's Kitchen by Deborah Madison
Vegetable Soups from Deborah Madison's Kitchen by Deborah Madison
Field of Green: New Vegetarian Recipes from Greens restaurant by Annie somerville
Raw The Uncook Book by Juliano Brotman
Raw by Roxanne Klein, Charlie Trotter. I have had the pleasure of eating at Roxanne's in Larkspur, California - a delightful culinary experience that is well equal to any fine dining experience in Europe. These meals take a long time to prepare.They are made totally from raw nuts, vegetables, fruits, and sprouted grains with all the remaining enzymes still active and abundant. Roxanne has closed her restaurant but still has take out, equally delicious.
The Savoury Way by Deborah Madison
Whole Grains Sourdough Bread Video very informative for anyone serious about baking non-yeasted spelt bread. Laurel's Kitchen Bread Book can be found at the same site.
Vegetarian Cooking for Everyone by Deborah Madison A very thick vegetarian cooking book that has many vegetables listed and ways to cook them. She is my favorite cookbook author and Greens Restaurant in Ft Mason in San Francisco is a must for me whenever I visit the Bay Area. For a review of this book click here.

Millennium Cookbook: Extraordinary Vegan Cuisine by Eric Tucker. This cookbook uses seitan, wheat and soy products (I avoid soy seitan and wheat as it makes my liver cysts grow). It is heart healthy vegan dishes.This is the number one favorite restaurants of vegetarians in the USA. My personal favorite is Fleur de Lys in San Francisco on Sutter Street and Greens Restaurant in San Francisco. Charlie Trotters Vegetables by Charlie Trotter. Plan on spending all day preparing these recipes. They are delicious but require planning.
OTHER USEFUL BOOKS
Cookbook Dialysis
Cookbook Renal
or download a copy of a Renal Cookbook
Low Protein for PKU. Though this book is written for PKU, the recipe are useful for a very low protein diet. This is the book renal dieticians used for recipes for 22 gram protein diet supplemented with nitrogen poor amino acids from Dr. Walser's program at Johns Hopkins.

COPING WITH KIDNEY DISEASE by Mackenzie Walser MD Johns Hopkins University Professor of Medicine. – a review
Coping with Kidney Disease is a useful, well-written and helpful book when one is approaching dialysis or transplant. It is written for the layperson, however parts are technical. Precise directions are given as to how one can go about arresting the downward progression of kidney disease once protein appears in the urine. Limiting protein to 22 grams each day or 0.3 grams per kilogram of body weight, supplementing with nitrogen poor essential amino acids, and maintaining alkalinity accomplishes this. I have seen this work with one extremely well motivated individual. If dropping the daily protein intake before nephrotic syndrome develops is helpful, has not yet been established. The book uses sodium bicarbonate to correct acidosis. A better alternative alkalizer might be sodium citrate. Several unique observations are made by Dr. Walser
• nausea and vomiting is associated with anemia
• leg cramps - itching is when the body is too acid
He corrects anemia early so it does not lead to LVH left ventricular hypertrophy. I would add when taking iron tablets take an all natural rose hips vitamin C for increased iron absorption. He goes over medications including many OTC’s that can precipitate a decline in kidney functioning. Very interesting reading email
Reverse Aging by Sang Whang - a review
This book has an alternative to eating alkaline or to supplementing with potassium citrate or nettle extract by drinking alkaline corrected tap water. I have yet to try a water ionizer. He writes about a far infrared device and the use of acid water to wash. Farmers dip fruits and vegetables in acid waters to keep them crisper. I found this interesting since most of the books on youthful skin talk of using acid solutions. His explanation seems plausible - that the skin needs the added acidity to keep bacteria from invading and penetrating the skin. email
An Apple a Day - Is it enough today? by M.Ted Morter, Though it is about an alkaline diet, it is not geared specifically to kidney or liver disease.

Bowes & Church's Food values of portions commonly used. By Pennington & Bowes
USDA national nutrient database for an online search.

LINKS
PKDiet web site listing a program to try with dietary changes, lifestyle changes for individuals with cystic organs —kidney, liver, Caroli's, medullary sponge kidney, PKD, PLD, and more.

FOODS
List of Low Protein Foods provided by Gayle
Blueberry and cranberry are especially useful for kidney health. Northland brand is delicious. Dilute 2 ounces in 1 ounce of mineral water. Even better is to freshly juice in season cranberries.
Bread non yeasted breads like Spelt bread can be purchased online from Pacific Bakery. They have a variety of non-yeasted breads such as Spelt, Rice, Rye, or Kamut; Rebates and deals; nutritional info; recipes spelt and spreads and purchase an informative Video on How to bake Non Yeasted Breads.
Parsley is useful to lower blood pressure. Chew a few freshly grown sprigs. It will need to be planted each year.
Garlic is another food that helps lower blood pressure, maintain alkalinity, and limit an increase in disease forming bacteria.
Cheese low Phosphorus developed by Nephrologists called Dairy Delicious link is from JC
Soups frozen vegan by Tabatchnick. Some Organic Soups; some low sodium soups.
Vegetarian Entrees special diets like all veggie frozen-Taste- like-Chicken-Nuggets from Gardenburgers Soy Free foods are here.
Amy's organic frozen entrees, low sodium Celiac Disease, Vegetarian soups. Carefully check all ingredients. Avoid soy and dairy with liver cysts.
Mulungai or drumstick plant is said to be very useful as a solution to world hunger. This vegetable is said to give protein to the body in a very digestible plant form. It is also called Moringa.
Saffron organic is available for about $35 for a huge tin which lasts about two months. This is a useful herb for liver cysts, lowering blood pressure, and encouraging clotted constricted vessels to lay down new pathways.
Salt Himalayan Pink crystal salt Halite also known as Himalayan crystal salt is a wonderful salt for those times when you need to use a touch. When combined with a natural artesian water filtered through layers of volcanic rock, one drop provides bodies with 84 essential minerals in the exact proportions that are needed by the body. It is said to have stored sunlight within its crystals. Here is a recipe for solé. To buy different forms of halite. Halite is useful for energy work. Most of this information is from the German book: Water and Salt the essence of Life.
Spelt flour is available from purity foods. Purity Foods is located in Okemos, Michigan USA. Spelt can be found at local health food stores.
Tupelo honey has a different molecular structure, higher in the ratio of levulose than any sweetener; thus it will never granulize. Its sugar structure is so different it bypasses the liver and is easily absorbed. It is one honey I consistently test alkaline and I experience no mood swings, headaches, or liver pains. It does not elevate my cholesterol. This was first harvested by Creek Indian tribes near what is now the southeastern states of Georgia, South Carolina, Mississippi, and Florida. The bee honey utilizes the nectar from the high black gum tree flowers that grows along river banks. Here is a map of where tupelo honey might be harvested based on the location of gum trees within the United States. Lanier is one company selling tupelo honey. I have heard it can be found at health food stores, Safeway, and bee apiary farms. Another delightful honey I have found in Europe is Linden flower honey, also a tree flower honey.
Thyme flowers make a delightful tea, a pleasant aromatic honey. Thyme can provide some antiseptic properties as well. Thymol is made from thyme.

last updated: Sunday, December 23, 2007 7:12 PM